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Cancer on the Margins : Method and Meaning in Participatory Research /

Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with brea...

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Detalles Bibliográficos
Otros Autores: Nelson, Jennifer J. (Jennifer Jill), 1972- (Editor ), Keller-Olaman, Sue (Editor ), Gould, Judy, 1966- (Editor )
Formato: Electrónico eBook
Idioma:Inglés
Publicado: Toronto [Ont.] : University of Toronto Press, [2009]
Colección:Book collections on Project MUSE.
Temas:
Acceso en línea:Texto completo

MARC

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245 0 0 |a Cancer on the Margins :   |b Method and Meaning in Participatory Research /   |c edited by Jennifer J. Nelson, Judy Gould, and Sue Keller-Olaman. 
264 1 |a Toronto [Ont.] :  |b University of Toronto Press,  |c [2009] 
264 3 |a Baltimore, Md. :  |b Project MUSE,   |c 2023 
264 4 |c ©[2009] 
300 |a 1 online resource (288 pages). 
336 |a text  |b txt  |2 rdacontent 
337 |a computer  |b c  |2 rdamedia 
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505 0 |a Foreword / Heather Maclean -- Introduction / Jennifer J. Nelson, Judy Gould and Sue Keller-Olaman -- pt. 1. Research Design in Participatory Approaches -- 1. Getting Started in Research with Marginalized Populations / Sue Keller-Olaman and Stephanie Austin -- 2. Ethical Considerations in Participatory Breast Cancer Research / Stephanie Austin -- 3. Community-Building versus Career-Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities / Terry Mitchell and Emerance Baker -- pt. 2. Approaches in Data Analysis -- 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care / Judy Gould, Chris Sinding, Terry Mitchell and Margaret I. Fitch -- 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers / Chris Sinding -- pt. 3. Politics of Representation -- 6. Stories We Tell: Processes and Politics of Representation / Chris Sinding, Lisa Barnoff, Pamela Grassau, Fran Odette and Patti McGillicuddy -- 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority / Jennifer J. Nelson -- pt. 4. Reflections on Research: From Different Standpoints -- 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change / Jennifer J. Nelson and Judy Gould -- 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways / Pamela Grassau and Kara Griffin -- 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles / Patti McGillicuddy, Falia Damianakis, Ann Wray Hampson and Judy Gould -- pt. 5. Implications and Impacts of Knowledge -- 11. Making a Difference with Research / Chris Sinding, Judy Gould and Ross Gray -- 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research / Margaret I. Fitch. 
520 |a Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with breast cancer, while investigating differences in treatment, care, and survivorship amongst Aboriginal women, women of colour, francophone women, lesbians, as well as young women, lower-income women, and women in rural areas. Structured as a guide for similar research, Cancer on the Margins provides a "start to finish" format that reveals the complexities of doing such work at each stage of research, beginning with the study design and ending with the dissemination of results. The authors address the challenges of working with and speaking for these groups of women, the tension between description and interpretation, and the challenge for qualitative work to present findings that positively influence the circumstances of research participants. With a strong commitment to social justice, this volume also shows how participatory research can lead to social change, and indicates effective ways to ensure that research not only reaches, but is also employed in, the communities it intends to serve. Bridging the gap between a wide range of audiences, this vitally important work will be of interest to health professionals, new researchers, policy makers, new researchers, and experienced investigators, as well as the public. 
546 |a English. 
588 |a Description based on print version record. 
650 7 |a Women's health services  |x Research.  |2 fast  |0 (OCoLC)fst01178747 
650 7 |a Women  |x Health and hygiene  |x Research.  |2 fast  |0 (OCoLC)fst01176771 
650 7 |a Participant observation.  |2 fast  |0 (OCoLC)fst01054032 
650 7 |a Marginality, Social.  |2 fast  |0 (OCoLC)fst01009156 
650 7 |a MEDICAL  |x General.  |2 bisacsh 
650 7 |a HEALTH & FITNESS  |x Diseases  |x Cancer.  |2 bisacsh 
650 7 |a social history.  |2 aat 
650 6 |a Femmes. 
650 6 |a Histoire sociale. 
650 6 |a Sein  |x Cancer  |x Patients  |x Conditions sociales  |x Recherche  |z Ontario. 
650 6 |a Marginaux. 
650 6 |a Observation participante. 
650 6 |a Femmes  |x Soins medicaux  |x Recherche  |z Ontario. 
650 6 |a Femmes  |x Sante et hygiene  |x Recherche  |z Ontario. 
650 6 |a Cancer chez la femme  |x Aspect social  |x Recherche  |z Ontario. 
650 6 |a Sein  |x Cancer  |x Patientes  |x Conditions sociales  |x Recherche  |z Ontario. 
650 2 2 |a Women 
650 2 2 |a Social Conditions 
650 2 2 |a Empirical Research 
650 1 2 |a Breast Neoplasms 
650 0 |a Women. 
650 0 |a Social history. 
650 0 |a Women's health services  |x Research  |z Ontario. 
650 0 |a Women  |x Health and hygiene  |x Research  |z Ontario. 
650 0 |a Participant observation. 
650 0 |a Marginality, Social. 
650 0 |a Cancer in women  |x Social aspects  |x Research  |z Ontario. 
650 0 |a Breast  |x Cancer  |x Patients  |x Social conditions  |x Research  |z Ontario. 
651 7 |a Ontario.  |2 fast  |0 (OCoLC)fst01204832 
651 2 |a Ontario 
655 7 |a Electronic books.   |2 local 
700 1 |a Nelson, Jennifer J.  |q (Jennifer Jill),  |d 1972-  |e editor. 
700 1 |a Keller-Olaman, Sue,  |e editor. 
700 1 |a Gould, Judy,  |d 1966-  |e editor. 
710 2 |a Project Muse.  |e distributor 
830 0 |a Book collections on Project MUSE. 
856 4 0 |z Texto completo  |u https://projectmuse.uam.elogim.com/book/106013/ 
945 |a Project MUSE - Custom Collection