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Neuropalliative care. Part II /

Detalles Bibliográficos
Clasificación:Libro Electrónico
Otros Autores: Miyasaki, Janis M. (Editor ), Kluger, Benzi M. (Editor )
Formato: Electrónico eBook
Idioma:Inglés
Publicado: Amsterdam : Elsevier, 2023.
Colección:Handbook of Clinical Neurology ; v. 191
Temas:
Acceso en línea:Texto completo

MARC

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245 0 0 |a Neuropalliative care.  |n Part II /  |c Edited by Janis M. Miyasaki, Benzi M. Kluger. 
260 |a Amsterdam :  |b Elsevier,  |c 2023. 
300 |a 1 online resource 
336 |a text  |2 rdacontent 
337 |a computer  |2 rdamedia 
338 |a online resource  |2 rdacarrier 
490 0 |a Handbook of Clinical Neurology ;  |v v. 191 
500 |a Includes index. 
505 0 |a Intro -- Neuropalliative Care: Part II -- Copyright -- Available titles -- Foreword -- Preface -- Contributors -- Contents -- Section 3: Neuropalliative care in specific settings -- Chapter 1: Palliative care after stroke survival -- Introduction -- Symptom Management -- Chronic pain -- Musculoskeletal pain -- Central poststroke pain -- Complex regional pain syndrome -- Chronic headache -- Opioids for poststroke pain -- Anxiety and depression -- Sleep, sleepiness, and fatigue -- Spiritual and existential suffering -- Other -- Goals-of-Care Conversations -- Family Needs -- End-of-Life Care and Hospice -- Research Directions -- References -- Chapter 2: Palliative care approaches to acute stroke in the hospital setting -- Introduction -- Stroke Background -- Epidemiology -- Initial stroke assessment -- Communication in the Acute Stroke Period -- Delivering serious news -- Establishing goals of care -- Symptom Management -- Dyspnea and respiratory failure -- Dysphagia -- Communication difficulties -- Delirium -- Constipation and incontinence -- Immobility -- Pain -- Spasticity -- Neuropsychiatric Complications -- Depression -- Anxiety -- Apathy -- Anger or aggression -- Prognostication -- Ischemic stroke -- Hemorrhagic stroke -- Recommendations for prognostication -- Advance Care Planning and Stroke -- Timing of palliative care -- End-of-life palliative care (hospice care) -- Family support -- Conclusion -- References -- Chapter 3: Outpatient neuropalliative care -- Introduction -- Definition and Scope of Neuropalliative Care -- Need for Outpatient Neuropalliative Care -- Modes of Delivery for Outpatient Neuropalliative Care -- Models of Outpatient Neuropalliative Care -- Patient Selection and Timing of Outpatient Neuropalliative Care -- Components of a Neuropalliative Care Visit. 
505 8 |a Communication About Serious Illness: Cultivation of Prognostic Awareness and Exploration of Goals and Values -- Prepare for the conversation -- Explore patients readiness for serious illness communication -- Explore patients illness understanding -- Discuss patients hopes, worries, and personal goals -- Provide prognostic information -- Re-exploring patient preferences -- Communication best practices and responding to patient emotion -- Advance Care Planning -- Facilitating Adaptive Coping -- Symptom Management -- Physical symptoms -- Pain -- Spasticity and Muscle Cramping -- Dyspnea -- Constipation -- Fatigue -- Sleep Disturbance -- Speech and Swallowing Issues -- Cognitive and Behavioral Changes -- Mobility Changes -- Emotional and psychosocial symptoms -- Spiritual needs -- Caregiver Needs Assessment and Care Coordination -- End-of-Life Care -- Conclusions -- References -- Chapter 4: Community-based neuropalliative care -- Definition of Community-Based Neuropalliative Care -- Evidence for Community-Based Palliative Care in Mixed and Nonneurologic Populations -- Evidence for Community-Based Neuropalliative Care in the Home for Specific Neurologic Illnesses -- Neurooncology -- Multiple sclerosis -- Parkinson's disease and related disorders -- Amyotrophic lateral sclerosis -- Combined neurodegenerative conditions -- Evidence for Nursing Home-Based Neuropalliative Care for Specific Neurologic Illnesses -- Dementia -- Parkinson's disease and related disorders -- The Impact of the COVID-19 Pandemic on the Delivery of Community-Based Neuropalliative Care -- Challenges, Gaps, and Future Directions in the Provision and Study of Community-Based Neuropalliative Care -- References -- Section 4: Neuropalliative care for specific conditions -- Chapter 5: Palliative care in brain tumors -- The Role of Palliative Care in Neuro-Oncology. 
505 8 |a Brain Tumors: An Overview -- Treatment of gliomas -- Direct tumor effects and treatment-induced neurotoxicity -- Seizures -- Headaches -- Fatigue and sleep disturbances -- Advance care planning -- Caregiver and psychosocial support -- Conclusion -- References -- Chapter 6: Palliative care for people with dementia -- Introduction -- Anticipating Palliative Care Needs -- Common Palliative Care Needs -- Psychosocial needs -- Physical needs -- Pain -- Dyspnea and swallowing disorders -- Appetite disorder, weight loss, and malnutrition -- Constipation -- Gait impairment, falls, and immobility -- Seizures -- Spiritual and emotional needs -- Emotional distress and grief in the person with dementia -- Anticipatory grief in families -- Palliative Care for People with Young Onset Dementia -- End-of-Life Care -- Symptom relief -- Terminal delirium -- Respiratory tract infection and pneumonia -- Supporting families through bereavement -- Models of Palliative Care for People With Dementia -- EAPC white paper -- Community dementia palliative care -- Core components -- Optimal service organization -- Barriers -- Effectiveness of community models -- Service led by SPC team -- Service led by dementia team -- Integration of existing services -- Residential Care Dementia Palliative Care -- Acute Hospital Dementia Palliative Care -- Conclusions -- References -- Chapter 7: Palliative care in Parkinson disease and related disorders -- Disease Burden -- Motor symptoms -- Nonmotor symptoms -- Neuropsychiatric symptoms -- Other nonmotor symptom burden -- Other burden -- Care partner burden -- Methods for identifying symptoms -- Treatment of Nonmotor Symptoms -- Autonomic -- Treatment of Motor Symptoms -- Advance Care Planning -- End-of-Life Care -- Disease features specific to the end of life: Dysphagia -- Predicting the End of Life in PD and Related disorders. 
505 8 |a End-of-life care preferences -- Models of Palliative Care in PD and Related Disorders -- Novel care delivery methods -- Conclusions -- References -- Further reading -- Chapter 8: Palliative care in multiple sclerosis -- Introduction -- Symptoms -- Treatment in MS -- Palliative care: General principles -- Palliative Care: Description of the Intervention -- Palliative Care in Neurological Diseases -- Dynamic Model in Palliative Care -- Screening for Palliative Care Needs -- Estimate Prognosis in MS -- Palliative Care in Multiple Sclerosis -- Interventions and Trials in Multiple Sclerosis -- Communication Considerations in Multiple Sclerosis -- End of Life -- Conclusion -- References -- Chapter 9: Palliative care principles in ALS -- Introduction -- Heterogeneity of Disease -- When to Introduce Advance Care Planning and Goals-of-Care Discussions -- Models of Providing Palliative Care -- Respiratory Support -- Nutrition Support -- Symptom Management -- Sialorrhea and dry mouth -- Pain -- Spasticity -- Cramps -- Fasciculations -- Mood -- Pseudobulbar affect -- Insomnia -- Cognitive and/or behavioral impairment -- Dysarthria and communication issues -- Medication Review -- Psychosocial Issues -- Advance Care Planning -- End of Life -- Invasive Ventilation and NIV Withdrawal -- Assisted Dying -- Organ Donation -- Bereavement Support -- Future Studies -- Conclusion -- References -- Chapter 10: Pediatric neuropalliative care -- Introduction -- Defining the Population -- Communication Skills -- Parents as decision makers -- Cultural humility in communication -- Communicating prognosis -- Challenges in shared decision making -- Ethical issues -- Symptom Management -- Pain -- Evaluation -- Management -- Irritability -- Feeding intolerance -- Autonomic dysfunction -- Sleep disturbances -- Depression/anxiety/PTSD -- Spasticity -- Seizures. 
505 8 |a Symptom management summary -- End of Life Care -- Communication -- End of life conversations -- Symptom management -- Dyspnea -- Palliative sedation -- Hospice -- Bereavement -- Limitations and Future Directions -- Disclosures -- References -- Chapter 11: Neonatal neuropalliative care -- Introduction -- Family-Centered Communication -- Antenatal counseling -- At birth -- In the neonatal ICU -- After discharge -- Prognostication and Decision-Making -- Antenatal diagnoses -- At birth -- In the neonatal ICU -- After discharge -- Pain and Symptom Management -- At birth -- In the neonatal ICU -- After discharge -- Care at the End of Life -- Withdrawal of life-sustaining interventions -- Grief and bereavement -- Considerations of Culture, Spirituality, and Practice Location -- Research Gaps and Priorities -- Family centered communication -- Prognostication and decision-making -- Symptom management -- Summary -- Disclosures -- References -- Section 5: Psychosocial support, ethics and education -- Chapter 12: Care partner support -- Introduction -- Concepts in Care Partnering -- The Stress Process Model for Care Partners in Palliative Neurology -- Care Partner Considerations by Disease -- Alzheimer's and related dementias (ADRD) -- Parkinson's disease -- Amyotrophic lateral sclerosis -- Multiple sclerosis -- Stroke -- Interventions, Supports, and Resources for Care Partners in Palliative Neurology -- Communication and advance care planning -- Education and skill building interventions -- Social support interventions -- Future Research Priorities -- Conclusions -- References -- Chapter 13: Spirituality and spiritual distress in neurologic illness -- Introduction -- Definitions of Key Terms -- Spirituality and religion -- Spiritual distress -- Suffering -- Spirituality in Neurologic Disease for Patients, Caregivers, and Families -- Patients. 
650 0 |a Nervous system  |x Diseases  |x Palliative treatment. 
650 0 |a Palliative treatment. 
650 2 |a Palliative Care  |0 (DNLM)D010166 
650 6 |a Syst�eme nerveux  |0 (CaQQLa)201-0007359  |x Maladies  |0 (CaQQLa)201-0007359  |x Traitement palliatif.  |0 (CaQQLa)201-0373868 
650 6 |a Soins palliatifs.  |0 (CaQQLa)201-0052616 
650 7 |a Palliative treatment  |2 fast  |0 (OCoLC)fst01051719 
700 1 |a Miyasaki, Janis M.,  |e editor. 
700 1 |a Kluger, Benzi M.,  |e editor. 
776 0 8 |c Original  |z 0128245352  |z 9780128245354  |w (OCoLC)1303075883 
856 4 0 |u https://sciencedirect.uam.elogim.com/science/handbooks/00729752/191  |z Texto completo