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230115s2023 ne o 001 0 eng d |
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|a YDX
|b eng
|c YDX
|d OPELS
|d UKAHL
|d UKMGB
|d OCLCF
|d SFB
|d OCLCO
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|a GBC309470
|2 bnb
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|a 020870779
|2 Uk
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|a 1363839184
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|a 9780323860086
|q (electronic bk.)
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|a 0323860087
|q (electronic bk.)
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|z 9780128245354
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|a (OCoLC)1356944845
|z (OCoLC)1363839184
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|a RC346
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|a 616.8
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|a Neuropalliative care.
|n Part II /
|c Edited by Janis M. Miyasaki, Benzi M. Kluger.
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|a Amsterdam :
|b Elsevier,
|c 2023.
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|a 1 online resource
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|a text
|2 rdacontent
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|a computer
|2 rdamedia
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|a online resource
|2 rdacarrier
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|a Handbook of Clinical Neurology ;
|v v. 191
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|a Includes index.
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|a Intro -- Neuropalliative Care: Part II -- Copyright -- Available titles -- Foreword -- Preface -- Contributors -- Contents -- Section 3: Neuropalliative care in specific settings -- Chapter 1: Palliative care after stroke survival -- Introduction -- Symptom Management -- Chronic pain -- Musculoskeletal pain -- Central poststroke pain -- Complex regional pain syndrome -- Chronic headache -- Opioids for poststroke pain -- Anxiety and depression -- Sleep, sleepiness, and fatigue -- Spiritual and existential suffering -- Other -- Goals-of-Care Conversations -- Family Needs -- End-of-Life Care and Hospice -- Research Directions -- References -- Chapter 2: Palliative care approaches to acute stroke in the hospital setting -- Introduction -- Stroke Background -- Epidemiology -- Initial stroke assessment -- Communication in the Acute Stroke Period -- Delivering serious news -- Establishing goals of care -- Symptom Management -- Dyspnea and respiratory failure -- Dysphagia -- Communication difficulties -- Delirium -- Constipation and incontinence -- Immobility -- Pain -- Spasticity -- Neuropsychiatric Complications -- Depression -- Anxiety -- Apathy -- Anger or aggression -- Prognostication -- Ischemic stroke -- Hemorrhagic stroke -- Recommendations for prognostication -- Advance Care Planning and Stroke -- Timing of palliative care -- End-of-life palliative care (hospice care) -- Family support -- Conclusion -- References -- Chapter 3: Outpatient neuropalliative care -- Introduction -- Definition and Scope of Neuropalliative Care -- Need for Outpatient Neuropalliative Care -- Modes of Delivery for Outpatient Neuropalliative Care -- Models of Outpatient Neuropalliative Care -- Patient Selection and Timing of Outpatient Neuropalliative Care -- Components of a Neuropalliative Care Visit.
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|a Communication About Serious Illness: Cultivation of Prognostic Awareness and Exploration of Goals and Values -- Prepare for the conversation -- Explore patients readiness for serious illness communication -- Explore patients illness understanding -- Discuss patients hopes, worries, and personal goals -- Provide prognostic information -- Re-exploring patient preferences -- Communication best practices and responding to patient emotion -- Advance Care Planning -- Facilitating Adaptive Coping -- Symptom Management -- Physical symptoms -- Pain -- Spasticity and Muscle Cramping -- Dyspnea -- Constipation -- Fatigue -- Sleep Disturbance -- Speech and Swallowing Issues -- Cognitive and Behavioral Changes -- Mobility Changes -- Emotional and psychosocial symptoms -- Spiritual needs -- Caregiver Needs Assessment and Care Coordination -- End-of-Life Care -- Conclusions -- References -- Chapter 4: Community-based neuropalliative care -- Definition of Community-Based Neuropalliative Care -- Evidence for Community-Based Palliative Care in Mixed and Nonneurologic Populations -- Evidence for Community-Based Neuropalliative Care in the Home for Specific Neurologic Illnesses -- Neurooncology -- Multiple sclerosis -- Parkinson's disease and related disorders -- Amyotrophic lateral sclerosis -- Combined neurodegenerative conditions -- Evidence for Nursing Home-Based Neuropalliative Care for Specific Neurologic Illnesses -- Dementia -- Parkinson's disease and related disorders -- The Impact of the COVID-19 Pandemic on the Delivery of Community-Based Neuropalliative Care -- Challenges, Gaps, and Future Directions in the Provision and Study of Community-Based Neuropalliative Care -- References -- Section 4: Neuropalliative care for specific conditions -- Chapter 5: Palliative care in brain tumors -- The Role of Palliative Care in Neuro-Oncology.
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|a Brain Tumors: An Overview -- Treatment of gliomas -- Direct tumor effects and treatment-induced neurotoxicity -- Seizures -- Headaches -- Fatigue and sleep disturbances -- Advance care planning -- Caregiver and psychosocial support -- Conclusion -- References -- Chapter 6: Palliative care for people with dementia -- Introduction -- Anticipating Palliative Care Needs -- Common Palliative Care Needs -- Psychosocial needs -- Physical needs -- Pain -- Dyspnea and swallowing disorders -- Appetite disorder, weight loss, and malnutrition -- Constipation -- Gait impairment, falls, and immobility -- Seizures -- Spiritual and emotional needs -- Emotional distress and grief in the person with dementia -- Anticipatory grief in families -- Palliative Care for People with Young Onset Dementia -- End-of-Life Care -- Symptom relief -- Terminal delirium -- Respiratory tract infection and pneumonia -- Supporting families through bereavement -- Models of Palliative Care for People With Dementia -- EAPC white paper -- Community dementia palliative care -- Core components -- Optimal service organization -- Barriers -- Effectiveness of community models -- Service led by SPC team -- Service led by dementia team -- Integration of existing services -- Residential Care Dementia Palliative Care -- Acute Hospital Dementia Palliative Care -- Conclusions -- References -- Chapter 7: Palliative care in Parkinson disease and related disorders -- Disease Burden -- Motor symptoms -- Nonmotor symptoms -- Neuropsychiatric symptoms -- Other nonmotor symptom burden -- Other burden -- Care partner burden -- Methods for identifying symptoms -- Treatment of Nonmotor Symptoms -- Autonomic -- Treatment of Motor Symptoms -- Advance Care Planning -- End-of-Life Care -- Disease features specific to the end of life: Dysphagia -- Predicting the End of Life in PD and Related disorders.
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|a End-of-life care preferences -- Models of Palliative Care in PD and Related Disorders -- Novel care delivery methods -- Conclusions -- References -- Further reading -- Chapter 8: Palliative care in multiple sclerosis -- Introduction -- Symptoms -- Treatment in MS -- Palliative care: General principles -- Palliative Care: Description of the Intervention -- Palliative Care in Neurological Diseases -- Dynamic Model in Palliative Care -- Screening for Palliative Care Needs -- Estimate Prognosis in MS -- Palliative Care in Multiple Sclerosis -- Interventions and Trials in Multiple Sclerosis -- Communication Considerations in Multiple Sclerosis -- End of Life -- Conclusion -- References -- Chapter 9: Palliative care principles in ALS -- Introduction -- Heterogeneity of Disease -- When to Introduce Advance Care Planning and Goals-of-Care Discussions -- Models of Providing Palliative Care -- Respiratory Support -- Nutrition Support -- Symptom Management -- Sialorrhea and dry mouth -- Pain -- Spasticity -- Cramps -- Fasciculations -- Mood -- Pseudobulbar affect -- Insomnia -- Cognitive and/or behavioral impairment -- Dysarthria and communication issues -- Medication Review -- Psychosocial Issues -- Advance Care Planning -- End of Life -- Invasive Ventilation and NIV Withdrawal -- Assisted Dying -- Organ Donation -- Bereavement Support -- Future Studies -- Conclusion -- References -- Chapter 10: Pediatric neuropalliative care -- Introduction -- Defining the Population -- Communication Skills -- Parents as decision makers -- Cultural humility in communication -- Communicating prognosis -- Challenges in shared decision making -- Ethical issues -- Symptom Management -- Pain -- Evaluation -- Management -- Irritability -- Feeding intolerance -- Autonomic dysfunction -- Sleep disturbances -- Depression/anxiety/PTSD -- Spasticity -- Seizures.
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|a Symptom management summary -- End of Life Care -- Communication -- End of life conversations -- Symptom management -- Dyspnea -- Palliative sedation -- Hospice -- Bereavement -- Limitations and Future Directions -- Disclosures -- References -- Chapter 11: Neonatal neuropalliative care -- Introduction -- Family-Centered Communication -- Antenatal counseling -- At birth -- In the neonatal ICU -- After discharge -- Prognostication and Decision-Making -- Antenatal diagnoses -- At birth -- In the neonatal ICU -- After discharge -- Pain and Symptom Management -- At birth -- In the neonatal ICU -- After discharge -- Care at the End of Life -- Withdrawal of life-sustaining interventions -- Grief and bereavement -- Considerations of Culture, Spirituality, and Practice Location -- Research Gaps and Priorities -- Family centered communication -- Prognostication and decision-making -- Symptom management -- Summary -- Disclosures -- References -- Section 5: Psychosocial support, ethics and education -- Chapter 12: Care partner support -- Introduction -- Concepts in Care Partnering -- The Stress Process Model for Care Partners in Palliative Neurology -- Care Partner Considerations by Disease -- Alzheimer's and related dementias (ADRD) -- Parkinson's disease -- Amyotrophic lateral sclerosis -- Multiple sclerosis -- Stroke -- Interventions, Supports, and Resources for Care Partners in Palliative Neurology -- Communication and advance care planning -- Education and skill building interventions -- Social support interventions -- Future Research Priorities -- Conclusions -- References -- Chapter 13: Spirituality and spiritual distress in neurologic illness -- Introduction -- Definitions of Key Terms -- Spirituality and religion -- Spiritual distress -- Suffering -- Spirituality in Neurologic Disease for Patients, Caregivers, and Families -- Patients.
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650 |
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|a Nervous system
|x Diseases
|x Palliative treatment.
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650 |
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0 |
|a Palliative treatment.
|
650 |
|
2 |
|a Palliative Care
|0 (DNLM)D010166
|
650 |
|
6 |
|a Syst�eme nerveux
|0 (CaQQLa)201-0007359
|x Maladies
|0 (CaQQLa)201-0007359
|x Traitement palliatif.
|0 (CaQQLa)201-0373868
|
650 |
|
6 |
|a Soins palliatifs.
|0 (CaQQLa)201-0052616
|
650 |
|
7 |
|a Palliative treatment
|2 fast
|0 (OCoLC)fst01051719
|
700 |
1 |
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|a Miyasaki, Janis M.,
|e editor.
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700 |
1 |
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|a Kluger, Benzi M.,
|e editor.
|
776 |
0 |
8 |
|c Original
|z 0128245352
|z 9780128245354
|w (OCoLC)1303075883
|
856 |
4 |
0 |
|u https://sciencedirect.uam.elogim.com/science/handbooks/00729752/191
|z Texto completo
|