Dying in America : improving quality and honoring individual preferences near the end of life /

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"For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care sett...

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Detalles Bibliográficos
Clasificación:Libro Electrónico
Formato: Electrónico eBook
Idioma:Inglés
Publicado: Washington, D.C. : The National Academies Press, [2015]
Temas:
Terminal care > United States.
Medical care > United States.
Death > United States.
Death > Psychological aspects.
Communication.
Human beings.
Misinformation.
Humans
Advance Care Planning
Hospice Care
Patient-Centered Care > standards
Terminal Care
Attitude to Death
Communication
Soins en phase terminale > États-Unis.
Mort > États-Unis.
Testament biologique.
Soins en phase terminale.
Mort > Aspect psychologique.
Information.
Êtres humains.
Mésinformation.
Homo sapiens (species)
HEALTH & FITNESS > Diseases > General.
MEDICAL > Clinical Medicine.
MEDICAL > Diseases.
MEDICAL > Evidence-Based Medicine.
MEDICAL > Internal Medicine.
Death > Psychological aspects
Death
Medical care
Terminal care
United States
Internet Resources.
Acceso en línea:Texto completo
Tabla de Contenidos:
  • 1. Introduction
  • 2. The delivery of person-centered, family-oriented end-of-life care
  • Review of the current situation
  • The palliative approach
  • The pursuit of quality in care near the end of life
  • The problem of prognosis
  • Family caregivers
  • 3. Clinician-patient communication and advance care planning
  • The current state of advance care planning and what it achieves
  • Advance care planning and treatment preferences among specific population groups
  • elements of good communication in advance care planning
  • Model advance care planning initiatives
  • A proposed life cycle model of advance care planning
  • Advance care planning in the context of common serious conditions
  • Oregon physician orders for life-sustaining treatment (POLST) form
  • 4. Professional education and development
  • Progress and continuing needs
  • Impediments to changing the culture of care through education
  • Roles and preparation of palliative care team members
  • 5. Policies and payment systems to support high-quality end-of-life care
  • The quality challenges
  • the cost challenges
  • Financing and organization of end-of-life care
  • Perverse incentives and program misalignment
  • The gap between services paid for and what patients and families want and need
  • The changing health care system : financing and organization
  • The need for greater transparency and accountability
  • 6. Public education and engagement
  • The state of public knowledge about end-of-life care
  • The changing climate for discussion of death and dying
  • Considerations for public education and engagement campaigns
  • Controversial issues
  • Glossary
  • Appendix A. Data sources and methods
  • Appendix B. Recommendations of the Institute of Medicine's reports Approaching Death (1997) and when Children Die (2003) : progress and significant remaining gaps
  • Appendix C. Summary of written public testimony
  • Appendix D. Financing care at the end of life and the implications of potential reforms
  • Appendix E. Epidemiology of serious illness and high utilization of health care
  • Appendix F. Pediatric end-of-life and palliative care : epidemiology and health service use
  • Appendix G. Committee biographies.

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