Governing biobanks : understanding the interplay between law and practice /

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Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment an...

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Bibliographic Details
Call Number:Libro Electrónico
Other Authors: Kaye, Jane, 1962-
Format: Electronic eBook
Language:Inglés
Published: Oxford [England] ; Portland, Or. : Hart Pub., 2012.
Subjects:
Biobanks > Law and legislation.
Biobanks > Management.
Biobanks > Law and legislation > Great Britain.
Biological Specimen Banks > ethics
Biological Specimen Banks > legislation & jurisprudence
Databases, Genetic > ethics
Databases, Genetic > legislation & jurisprudence
Government Regulation
Public Policy
Biobanques > Gestion.
Medical & healthcare law.
LAW > Administrative Law & Regulatory Practice.
Biobanks > Law and legislation
Wales.
England
Wales
Pays de Galles.
Great Britain
Online Access:Texto completo
Table of Contents:
  • From an idea to a project / Jane Kaye [and others]
  • Embedding biobanks in a changing context / Jane Kaye
  • Mapping the regulatory space / Susan M.C. Gibbons
  • Dynamic networks of practice / Catherine Heeney
  • Governance in practice : patterns of awareness and engagement / Susan M.C. Gibbons and Andrew Smart
  • General attitudes to governance / Susan M.C. Gibbons and Andrew Smart
  • Attitudes to particular laws and governing bodies / Susan M.C. Gibbons and Andrew Smart
  • Preferences for governance / Susan M.C. Gibbons and Andrew Smart
  • Enacting governance : the case of access / Catherine Heeney and Andrew Smart
  • Reflections on practice and governance / Jane Kaye
  • Ethics and the governance of biobanks / Catherine Heeney and Michael Parker.

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