Genetic secrets : protecting privacy and confidentiality in the genetic era /

Detalles Bibliográficos
Clasificación:Libro Electrónico
Otros Autores: Rothstein, Mark A.
Formato: Electrónico eBook
Idioma:Inglés
Publicado: New Haven : Yale University Press, ©1997.
Temas:
Medical genetics > Moral and ethical aspects.
Medical genetics > Law and legislation.
Medical records > Law and legislation.
Privacy, Right of.
Confidential communications > Physicians.
Medical records > Access control.
Génétique médicale > Aspect moral.
Médecine > Secret professionnel.
Dossiers médicaux > Accès > Contrôle.
POLITICAL SCIENCE > Political Freedom & Security > Civil Rights.
POLITICAL SCIENCE > Political Freedom & Security > Human Rights.
Confidential communications > Physicians
Medical genetics > Law and legislation
Medical genetics > Moral and ethical aspects
Medical records > Access control
Medical records > Law and legislation
Privacy, Right of
Acceso en línea:Texto completo
Tabla de Contenidos:
  • I. Background. Genes, genomes, and society / Leroy Hood and Lee Rowen
  • Genetic privacy : emerging concepts and values / Anita L. Allen
  • Genetic exceptionalism and "future diaries" : is genetic information different from other medical information? / Thomas H. Murray. II. The health care setting. Genetic privacy in the patient-physician relationship / David Orentlicher
  • A clinical geneticist perspective of the patient-physician relationship / Eugene Pergament
  • Privacy in genetic counseling / Barbara Bowles Biesecker
  • Informed consent and genetic research / Ellen Wright Clayton
  • Genetic screening from a public health perspective : some lessons from the HIV experience / Scott Burris and Lawrence O. Gostin. III. The effect of new technology. Confidentiality, collective resources, and commercial genomics / Robert Mullan Cook-Deegan
  • Biomarkers
  • scientific advances and societal implications / Paul W. Brandt-Rauf and Sherry I. Brandt-Rauf
  • Environmental population screening / Jonathan M. Samet and Linda A. Bailey
  • Are developments in forensic applications of DNA technology consistent with privacy protections? / Randall S. Murch and Bruce Budowle
  • DNA data banks / Jean E. McEwen.
  • IV. Nonmedical uses of genetic information. Gen-etiquette : genetic information, family relationships, and adoption / Lori B. Andrews
  • The law of medical and genetic privacy in the workplace / Mark A. Rothstein
  • The implications of genetic testing for health and life insurance / Nancy E. Kass
  • Genetic information in schools / Laura F. Rothstein
  • Courts and the challenges of adjudicating genetic testing's secrets / Franklin M. Zweig, Joseph T. Walsh, and Daniel M. Freeman. V. Ethics and law in the United States and abroad. Justice and genetics : privacy protection and the moral basis of public policy / Madison Powers
  • Laws to regulate the use of genetic information / Philip R. Reilly
  • European data protection law and medical privacy / Paul M. Schwartz
  • International and comparative concepts of privacy / Sonia Le Bris and Bartha Maria Knoppers. VI. Recommendations. Genetic secrets : a policy framework / Mark A. Rothstein.

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