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Comprehensive cancer care for children and their families : summary of a joint workshop by the Institute of Medicine and the American Cancer Society /

Childhood cancer is an area of oncology that has seen both remarkable progress as well as substantial continuing challenges. While survival rates for some pediatric cancers present a story of success, for many types of pediatric cancers, little progress has been made. Many cancer treatments are know...

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Detalles Bibliográficos
Clasificación:Libro Electrónico
Autor principal: Nass, Sharyl J. (rapporteur.)
Autor Corporativo: Comprehensive Cancer Care for Children and Their Families (Workshop)
Otros Autores: Patlak, Margie (rapporteur.)
Formato: Electrónico Congresos, conferencias eBook
Idioma:Inglés
Publicado: Washington, D.C. : National Academies Press, [2015]
Temas:
Acceso en línea:Texto completo
Tabla de Contenidos:
  • Overview Of The Current Landscape In Pediatric Cancer Research And Treatment
  • Trends and Challenges in Developing Drugs for Pediatric Cancer
  • Integrating Pediatric Palliative Care: Ensuring Child And Family Well-Being Along The Continuum
  • Generalist Plus Specialist Palliative Care
  • End-of-Life Care and Bereavement Care
  • The Role of Communication
  • Policy Opportunities to Improve Pediatric Palliative Care Across the Care Continuum
  • Psychosocial Challenges And Opportunities
  • Psychosocial Needs for Pediatric Patients
  • Psychosocial Needs of Families
  • Predicting and Screening for Distress
  • Parental Interventions to Alleviate Distress
  • Building Capacity for Psychosocial Care
  • Psychosocial Care Standards
  • Research Needs
  • Detecting Pain And Suffering
  • PROs in Clinical Research
  • PROs in Clinical Care
  • The State of the Science for Pediatric PROs
  • Parents as Proxies
  • Long-Term Effects
  • Predicting Complications
  • Screening for and Preventing Complications
  • Improving Care Transitions
  • Transitioning Off Treatment to Follow-Up Care
  • Transitioning to Adult Follow-Up Care
  • Supporting Providers
  • Supporting Patients
  • Models of Survivorship Care
  • Research Needs
  • Pediatric Oncology Data Collection And Registries
  • Integrating Databases for Research
  • Pediatric Proton Consortium Registry
  • Measuring Poverty and Its Impacts
  • Wrap-Up.