The Making of a Syndrome : the Making and Re-making of a Genetic Syndrome.
Based on original ethnographic research with scientists, clinicians and families, this book examines Rett syndrome to illuminate more general issues concerning the construction and interpretation of diseases and syndromes. It derives from research with a specialist team of clinicians and scientists,...
Clasificación: | Libro Electrónico |
---|---|
Autor principal: | |
Otros Autores: | |
Formato: | Electrónico eBook |
Idioma: | Inglés |
Publicado: |
Hoboken :
Taylor & Francis,
2011.
|
Colección: | Genetics and society (Series)
|
Temas: | |
Acceso en línea: | Texto completo |
Sumario: | Based on original ethnographic research with scientists, clinicians and families, this book examines Rett syndrome to illuminate more general issues concerning the construction and interpretation of diseases and syndromes. It derives from research with a specialist team of clinicians and scientists, and a series of families referred with a potential diagnosis of Rett syndrome, and documents the scientific, clinical, patient and family experiences over a three-year period. Although Rett syndrome itself is rare, it is one of some 2,000 such syndromes, and its genetic basis has recently been link. |
---|---|
Descripción Física: | 1 online resource (141 pages). |
ISBN: | 9780203878156 0203878159 |