Achieving justice in genomic translation : re-thinking the pathway to benefit /

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This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce.

Bibliographic Details
Call Number:Libro Electrónico
Other Authors: Burke, Wylie, Edwards, Kelly A., Goering, Sara
Format: Electronic eBook
Language:Inglés
Published: Oxford : Oxford University Press, USA, 2011.
Subjects:
Human genetics > Research > Moral and ethical aspects.
Genomics > Research > Moral and ethical aspects.
Genetic screening > Moral and ethical aspects.
Génétique humaine > Recherche > Aspect moral.
Génomique > Recherche > Aspect moral.
Dépistage génétique > Aspect moral.
MEDICAL > Ethics.
Genetic screening > Moral and ethical aspects
Human genetics > Research > Moral and ethical aspects
Online Access:Texto completo
Table of Contents:
  • Cover; Contents; 1. Making Good on the Promise of Genetics: Justice in Translational Science; 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo; 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter?; 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science; Commentary on the Discovery Phase of Research; 5. Early Assessment of Translational Opportunities; 6. The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing.

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