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Privacy and the Past : Research, Law, Archives, Ethics /
"In 2006, a HIPAA Compliance Officer in a rural Iowa county wanted to shut down a graduate student's research on a manuscript register of those admitted to a poor farm in the nineteenth century. The reason? It contained sensitive health information that could affect the well-being of livin...
| Autor principal: | |
|---|---|
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
New Brunswick, New Jersey :
Rutgers University Press,
2016.
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| Colección: | Book collections on Project MUSE.
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| Temas: | |
| Acceso en línea: | Texto completo |
MARC
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|---|---|---|---|
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| 005 | 20230905044951.0 | ||
| 006 | m o d | ||
| 007 | cr||||||||nn|n | ||
| 008 | 151130s2016 nju o 00 0 eng d | ||
| 020 | |a 9780813574387 | ||
| 020 | |z 0813574366 | ||
| 020 | |z 0813574382 | ||
| 020 | |z 9780813574363 | ||
| 035 | |a (OCoLC)957249094 | ||
| 040 | |a MdBmJHUP |c MdBmJHUP | ||
| 100 | 1 | |a Lawrence, Susan C., |e author. | |
| 245 | 1 | 0 | |a Privacy and the Past : |b Research, Law, Archives, Ethics / |c Susan C. Lawrence. |
| 264 | 1 | |a New Brunswick, New Jersey : |b Rutgers University Press, |c 2016. | |
| 264 | 3 | |a Baltimore, Md. : |b Project MUSE, |c 2016 | |
| 264 | 4 | |c ©2016. | |
| 300 | |a 1 online resource (188 pages). | ||
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a computer |b c |2 rdamedia | ||
| 338 | |a online resource |b cr |2 rdacarrier | ||
| 490 | 0 | |a Critical issues in health and medicine | |
| 505 | 0 | |a Introduction : The Historians, the County, and the Dead -- Research, Privacy, and Federal Regulations -- Historians, the First Amendment, and Invasion of Privacy -- Archivists at the Gates -- Managing Privacy : Historians at Work -- Conclusion : Resistance. | |
| 520 | |a "In 2006, a HIPAA Compliance Officer in a rural Iowa county wanted to shut down a graduate student's research on a manuscript register of those admitted to a poor farm in the nineteenth century. The reason? It contained sensitive health information that could affect the well-being of living county residents. The 2003 HIPAA Privacy Rule did, in fact, protect this document from historians' prying eyes. In Privacy and the Past, Susan C. Lawrence explores why she found this experience so troubling. In the process, she explores historians' ethical obligations to their research subjects, both the living and the dead. She queries the extent to which we do and should control access to information about people as historical actors and as unwitting participants in past events. She questions who gets to decide what is revealed and what is kept hidden in decades-old records. She examines laws and court cases, and tackles archives and archivists. She looks at how demands to maintain individual privacy both protect and erase the identities of people whose stories make up the historical record. She encourages historians to vigorously resist any expansion of regulatory language that extends privacy protections to the dead. This book offers a critical analysis of the ways that broad privacy concerns shape how and when historians can understand individuals' lives as they created our collective American past."-- |c Provided by publisher. | ||
| 546 | |a In English. | ||
| 588 | |a Description based on print version record. | ||
| 650 | 7 | |a Privacy, Right of. |2 fast |0 (OCoLC)fst01077444 | |
| 650 | 7 | |a History |x Research |x Law and legislation. |2 fast |0 (OCoLC)fst01937496 | |
| 650 | 7 | |a Historians |x Legal status, laws, etc. |2 fast |0 (OCoLC)fst00957700 | |
| 650 | 7 | |a LAW |x Public. |2 bisacsh | |
| 650 | 7 | |a LAW |x Constitutional. |2 bisacsh | |
| 650 | 7 | |a MEDICAL |x History. |2 bisacsh | |
| 650 | 7 | |a LAW |x Privacy. |2 bisacsh | |
| 650 | 7 | |a SCIENCE |x History. |2 bisacsh | |
| 650 | 7 | |a MEDICAL |x Ethics. |2 bisacsh | |
| 650 | 0 | |a Privacy, Right of |z United States. | |
| 650 | 0 | |a History |x Research |x Law and legislation |z United States. | |
| 650 | 0 | |a Historians |x Legal status, laws, etc. |z United States. | |
| 651 | 7 | |a United States. |2 fast |0 (OCoLC)fst01204155 | |
| 655 | 7 | |a Electronic books. |2 local | |
| 710 | 2 | |a Project Muse. |e distributor | |
| 830 | 0 | |a Book collections on Project MUSE. | |
| 856 | 4 | 0 | |z Texto completo |u https://projectmuse.uam.elogim.com/book/47766/ |
| 945 | |a Project MUSE - Custom Collection | ||
| 945 | |a Project MUSE - 2016 Complete | ||
| 945 | |a Project MUSE - 2016 History | ||