Testing Baby : The Transformation of Newborn Screening, Parenting, and Policymaking /
Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to...
Autor principal: | |
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Formato: | Electrónico eBook |
Idioma: | Inglés |
Publicado: |
New Brunswick, NJ :
Rutgers University Press,
[2011]
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Colección: | Book collections on Project MUSE.
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Temas: | |
Acceso en línea: | Texto completo |
Tabla de Contenidos:
- Saving babies, changing lives
- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease
- Specters in the room : parenting in the shadow of cystic fibrosis
- Encounters with expertise : parents and health care professionals
- A house on fire : how private experiences ignite public voices
- Brave new worlds : can they be seen in a drop of blood?