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Testing Baby : The Transformation of Newborn Screening, Parenting, and Policymaking /

Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to...

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Detalles Bibliográficos
Autor principal: Grob, Rachel, 1966-
Formato: Electrónico eBook
Idioma:Inglés
Publicado: New Brunswick, NJ : Rutgers University Press, [2011]
Colección:Book collections on Project MUSE.
Temas:
Acceso en línea:Texto completo
Tabla de Contenidos:
  • Saving babies, changing lives
  • Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease
  • Specters in the room : parenting in the shadow of cystic fibrosis
  • Encounters with expertise : parents and health care professionals
  • A house on fire : how private experiences ignite public voices
  • Brave new worlds : can they be seen in a drop of blood?