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Testing Baby : The Transformation of Newborn Screening, Parenting, and Policymaking /
Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to...
| Autor principal: | |
|---|---|
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
New Brunswick, NJ :
Rutgers University Press,
[2011]
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| Colección: | Book collections on Project MUSE.
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| Temas: | |
| Acceso en línea: | Texto completo |
MARC
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| 035 | |a (OCoLC)776108243 | ||
| 040 | |a MdBmJHUP |c MdBmJHUP | ||
| 100 | 1 | |a Grob, Rachel, |d 1966- | |
| 245 | 1 | 0 | |a Testing Baby : |b The Transformation of Newborn Screening, Parenting, and Policymaking / |c Rachel Grob. |
| 264 | 1 | |a New Brunswick, NJ : |b Rutgers University Press, |c [2011] | |
| 264 | 3 | |a Baltimore, Md. : |b Project MUSE, |c 2013 | |
| 264 | 4 | |c ©[2011] | |
| 300 | |a 1 online resource (290 pages). | ||
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a computer |b c |2 rdamedia | ||
| 338 | |a online resource |b cr |2 rdacarrier | ||
| 490 | 0 | |a Critical issues in health and medicine | |
| 505 | 0 | |a Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood? | |
| 520 | |a Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. Rachel Grob's cautionary tale explores the powerful ways that parents' narratives. | ||
| 546 | |a English. | ||
| 588 | |a Description based on print version record. | ||
| 650 | 7 | |a Eltern |2 gnd | |
| 650 | 7 | |a Gesundheitspolitik |2 gnd | |
| 650 | 7 | |a Reihenuntersuchung |2 gnd | |
| 650 | 7 | |a Neugeborenenkrankheit |2 gnd | |
| 650 | 7 | |a Newborn infants |x Diseases |x Diagnosis. |2 fast |0 (OCoLC)fst01430834 | |
| 650 | 7 | |a Medical screening. |2 fast |0 (OCoLC)fst01014632 | |
| 650 | 7 | |a MEDICAL |x Public Health. |2 bisacsh | |
| 650 | 7 | |a broader terms. |2 aat | |
| 650 | 6 | |a Politique sanitaire. | |
| 650 | 6 | |a Parents. | |
| 650 | 6 | |a Nouveau-nes. | |
| 650 | 6 | |a Depistage neonatal. | |
| 650 | 6 | |a Depistage (Medecine) | |
| 650 | 6 | |a Nouveau-nes |x Maladies |x Diagnostic. | |
| 650 | 2 | 2 | |a Health Policy |
| 650 | 2 | 2 | |a Parents |
| 650 | 1 | 2 | |a Infant, Newborn |
| 650 | 1 | 2 | |a Neonatal Screening |
| 650 | 0 | |a Medical policy. | |
| 650 | 0 | |a Parents. | |
| 650 | 0 | |a Newborn infants. | |
| 650 | 0 | |a Newborn screening. | |
| 650 | 0 | |a Medical screening. | |
| 650 | 0 | |a Newborn infants |x Diseases |x Diagnosis. | |
| 610 | 2 | 7 | |a Umschulungswerkstätten für Siedler und Auswanderer |g Bitterfeld |2 gnd |
| 655 | 7 | |a Electronic books. |2 local | |
| 710 | 2 | |a Project Muse. |e distributor | |
| 830 | 0 | |a Book collections on Project MUSE. | |
| 856 | 4 | 0 | |z Texto completo |u https://projectmuse.uam.elogim.com/book/14173/ |
| 945 | |a Project MUSE - Custom Collection | ||
| 945 | |a Project MUSE - 2011 Complete Supplement | ||
| 945 | |a Project MUSE - 2011 Political Science and Policy Studies Supplement | ||