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Neuropalliative care. Part II /
| Clasificación: | Libro Electrónico |
|---|---|
| Otros Autores: | , |
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
Amsterdam :
Elsevier,
2023.
|
| Colección: | Handbook of Clinical Neurology ;
v. 191 |
| Temas: | |
| Acceso en línea: | Texto completo |
Tabla de Contenidos:
- Intro
- Neuropalliative Care: Part II
- Copyright
- Available titles
- Foreword
- Preface
- Contributors
- Contents
- Section 3: Neuropalliative care in specific settings
- Chapter 1: Palliative care after stroke survival
- Introduction
- Symptom Management
- Chronic pain
- Musculoskeletal pain
- Central poststroke pain
- Complex regional pain syndrome
- Chronic headache
- Opioids for poststroke pain
- Anxiety and depression
- Sleep, sleepiness, and fatigue
- Spiritual and existential suffering
- Other
- Goals-of-Care Conversations
- Family Needs
- End-of-Life Care and Hospice
- Research Directions
- References
- Chapter 2: Palliative care approaches to acute stroke in the hospital setting
- Introduction
- Stroke Background
- Epidemiology
- Initial stroke assessment
- Communication in the Acute Stroke Period
- Delivering serious news
- Establishing goals of care
- Symptom Management
- Dyspnea and respiratory failure
- Dysphagia
- Communication difficulties
- Delirium
- Constipation and incontinence
- Immobility
- Pain
- Spasticity
- Neuropsychiatric Complications
- Depression
- Anxiety
- Apathy
- Anger or aggression
- Prognostication
- Ischemic stroke
- Hemorrhagic stroke
- Recommendations for prognostication
- Advance Care Planning and Stroke
- Timing of palliative care
- End-of-life palliative care (hospice care)
- Family support
- Conclusion
- References
- Chapter 3: Outpatient neuropalliative care
- Introduction
- Definition and Scope of Neuropalliative Care
- Need for Outpatient Neuropalliative Care
- Modes of Delivery for Outpatient Neuropalliative Care
- Models of Outpatient Neuropalliative Care
- Patient Selection and Timing of Outpatient Neuropalliative Care
- Components of a Neuropalliative Care Visit.
- Communication About Serious Illness: Cultivation of Prognostic Awareness and Exploration of Goals and Values
- Prepare for the conversation
- Explore patients readiness for serious illness communication
- Explore patients illness understanding
- Discuss patients hopes, worries, and personal goals
- Provide prognostic information
- Re-exploring patient preferences
- Communication best practices and responding to patient emotion
- Advance Care Planning
- Facilitating Adaptive Coping
- Symptom Management
- Physical symptoms
- Pain
- Spasticity and Muscle Cramping
- Dyspnea
- Constipation
- Fatigue
- Sleep Disturbance
- Speech and Swallowing Issues
- Cognitive and Behavioral Changes
- Mobility Changes
- Emotional and psychosocial symptoms
- Spiritual needs
- Caregiver Needs Assessment and Care Coordination
- End-of-Life Care
- Conclusions
- References
- Chapter 4: Community-based neuropalliative care
- Definition of Community-Based Neuropalliative Care
- Evidence for Community-Based Palliative Care in Mixed and Nonneurologic Populations
- Evidence for Community-Based Neuropalliative Care in the Home for Specific Neurologic Illnesses
- Neurooncology
- Multiple sclerosis
- Parkinson's disease and related disorders
- Amyotrophic lateral sclerosis
- Combined neurodegenerative conditions
- Evidence for Nursing Home-Based Neuropalliative Care for Specific Neurologic Illnesses
- Dementia
- Parkinson's disease and related disorders
- The Impact of the COVID-19 Pandemic on the Delivery of Community-Based Neuropalliative Care
- Challenges, Gaps, and Future Directions in the Provision and Study of Community-Based Neuropalliative Care
- References
- Section 4: Neuropalliative care for specific conditions
- Chapter 5: Palliative care in brain tumors
- The Role of Palliative Care in Neuro-Oncology.
- Brain Tumors: An Overview
- Treatment of gliomas
- Direct tumor effects and treatment-induced neurotoxicity
- Seizures
- Headaches
- Fatigue and sleep disturbances
- Advance care planning
- Caregiver and psychosocial support
- Conclusion
- References
- Chapter 6: Palliative care for people with dementia
- Introduction
- Anticipating Palliative Care Needs
- Common Palliative Care Needs
- Psychosocial needs
- Physical needs
- Pain
- Dyspnea and swallowing disorders
- Appetite disorder, weight loss, and malnutrition
- Constipation
- Gait impairment, falls, and immobility
- Seizures
- Spiritual and emotional needs
- Emotional distress and grief in the person with dementia
- Anticipatory grief in families
- Palliative Care for People with Young Onset Dementia
- End-of-Life Care
- Symptom relief
- Terminal delirium
- Respiratory tract infection and pneumonia
- Supporting families through bereavement
- Models of Palliative Care for People With Dementia
- EAPC white paper
- Community dementia palliative care
- Core components
- Optimal service organization
- Barriers
- Effectiveness of community models
- Service led by SPC team
- Service led by dementia team
- Integration of existing services
- Residential Care Dementia Palliative Care
- Acute Hospital Dementia Palliative Care
- Conclusions
- References
- Chapter 7: Palliative care in Parkinson disease and related disorders
- Disease Burden
- Motor symptoms
- Nonmotor symptoms
- Neuropsychiatric symptoms
- Other nonmotor symptom burden
- Other burden
- Care partner burden
- Methods for identifying symptoms
- Treatment of Nonmotor Symptoms
- Autonomic
- Treatment of Motor Symptoms
- Advance Care Planning
- End-of-Life Care
- Disease features specific to the end of life: Dysphagia
- Predicting the End of Life in PD and Related disorders.
- End-of-life care preferences
- Models of Palliative Care in PD and Related Disorders
- Novel care delivery methods
- Conclusions
- References
- Further reading
- Chapter 8: Palliative care in multiple sclerosis
- Introduction
- Symptoms
- Treatment in MS
- Palliative care: General principles
- Palliative Care: Description of the Intervention
- Palliative Care in Neurological Diseases
- Dynamic Model in Palliative Care
- Screening for Palliative Care Needs
- Estimate Prognosis in MS
- Palliative Care in Multiple Sclerosis
- Interventions and Trials in Multiple Sclerosis
- Communication Considerations in Multiple Sclerosis
- End of Life
- Conclusion
- References
- Chapter 9: Palliative care principles in ALS
- Introduction
- Heterogeneity of Disease
- When to Introduce Advance Care Planning and Goals-of-Care Discussions
- Models of Providing Palliative Care
- Respiratory Support
- Nutrition Support
- Symptom Management
- Sialorrhea and dry mouth
- Pain
- Spasticity
- Cramps
- Fasciculations
- Mood
- Pseudobulbar affect
- Insomnia
- Cognitive and/or behavioral impairment
- Dysarthria and communication issues
- Medication Review
- Psychosocial Issues
- Advance Care Planning
- End of Life
- Invasive Ventilation and NIV Withdrawal
- Assisted Dying
- Organ Donation
- Bereavement Support
- Future Studies
- Conclusion
- References
- Chapter 10: Pediatric neuropalliative care
- Introduction
- Defining the Population
- Communication Skills
- Parents as decision makers
- Cultural humility in communication
- Communicating prognosis
- Challenges in shared decision making
- Ethical issues
- Symptom Management
- Pain
- Evaluation
- Management
- Irritability
- Feeding intolerance
- Autonomic dysfunction
- Sleep disturbances
- Depression/anxiety/PTSD
- Spasticity
- Seizures.
- Symptom management summary
- End of Life Care
- Communication
- End of life conversations
- Symptom management
- Dyspnea
- Palliative sedation
- Hospice
- Bereavement
- Limitations and Future Directions
- Disclosures
- References
- Chapter 11: Neonatal neuropalliative care
- Introduction
- Family-Centered Communication
- Antenatal counseling
- At birth
- In the neonatal ICU
- After discharge
- Prognostication and Decision-Making
- Antenatal diagnoses
- At birth
- In the neonatal ICU
- After discharge
- Pain and Symptom Management
- At birth
- In the neonatal ICU
- After discharge
- Care at the End of Life
- Withdrawal of life-sustaining interventions
- Grief and bereavement
- Considerations of Culture, Spirituality, and Practice Location
- Research Gaps and Priorities
- Family centered communication
- Prognostication and decision-making
- Symptom management
- Summary
- Disclosures
- References
- Section 5: Psychosocial support, ethics and education
- Chapter 12: Care partner support
- Introduction
- Concepts in Care Partnering
- The Stress Process Model for Care Partners in Palliative Neurology
- Care Partner Considerations by Disease
- Alzheimer's and related dementias (ADRD)
- Parkinson's disease
- Amyotrophic lateral sclerosis
- Multiple sclerosis
- Stroke
- Interventions, Supports, and Resources for Care Partners in Palliative Neurology
- Communication and advance care planning
- Education and skill building interventions
- Social support interventions
- Future Research Priorities
- Conclusions
- References
- Chapter 13: Spirituality and spiritual distress in neurologic illness
- Introduction
- Definitions of Key Terms
- Spirituality and religion
- Spiritual distress
- Suffering
- Spirituality in Neurologic Disease for Patients, Caregivers, and Families
- Patients.