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|a UAMI
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|a Managing Chronicity in Unequal States :
|b Ethnographic perspectives on caring /
|c edited by Laura Montesi and Melania Calestani.
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|a London :
|b UCL Press,
|c 2021.
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|a 1 online resource (248 pages)
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|a text
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|a Embodying inequalities
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|a Cover -- Half Title -- Series Information -- Title Page -- Copyright Page -- Contents -- List of contributors -- Foreword -- References -- Acknowledgements -- Introduction -- Defining and defying chronicity -- Care and the politics of deservingness -- Structure of the book -- Concluding remarks -- Notes -- References -- 1 A house of cards: Chronicity, care packages and a 'good life' -- Background -- Methods -- Theoretical framework: Temporality, ethics and care -- Clarissa's struggle and the house of cards -- Temporal/spatial reconfiguration: a discussion -- Relationality: a discussion
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|a Conclusion -- Notes -- References -- 2 (Un)Deservingness and disregard: Chronicity, hospice and possibilities for care on the American periphery -- Deserving and undeserving of care -- (Un)Deservingness, attention and disregard -- Shaping a landscape of care through disregard -- Disregarded costs and the disappearance of medical equipment -- Claims to deservingness and bureaucratic mechanisms of disregard -- Durable medical equipment 'within reach' -- Snowbirds -- 'The only way to be heard': Inaudibility and absent complaints -- Ms Donovan -- Conclusion -- Notes -- References
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|a 3 Publicly privatised: Relative care support and the neoliberal reform in Finland -- Introduction -- Two facets of privatisation in the care system -- Relative caregivers in Archipelago Town and municipal support -- Families, relatives and caregiving practices in Archipelago Town -- Struggling with closed doors -- The professionalism of relative care -- The difference between relative caregivers and care workers -- Conclusion -- Notes -- References -- 4 The 'hassle' of 'good' care in dementia: Negotiating relatedness in the navigation of bureaucratic systems of support -- Introduction
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|a 'Official' paperwork -- The fuss and trust of relatedness -- 'Getting it all sorted': (Mis)adventures in bureaucratic hassle -- The state as a bad relative -- Conclusion -- References -- 5 Assemblages of care around albinism: Kin-based networks and (in)dependence in contemporary Tanzania -- Introduction -- Multiple assemblages of care around people with albinism -- The reduction of institutional care and the 'NGOisation' of the nation state -- Kin-based care and humanitarian discourses in Ilula: Florentina's experiences
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|a (In)dependence in Dar es Salaam: Daudi's self-care, care for and care about others -- Conclusion -- Note -- References -- 6 Alcoholism and evangelical healing in Indigenous Mexico: Chronicity and care at the margins of the state -- From comorbidity to syndemics of alcoholism and marginality -- Five centuries of alcoholisation -- Drinking at the margins -- Care for whom? Drinking patterns and the possibility of care -- Medical (un)care: Governmental health providers -- Evangelicals and alcohol: Healing within the community -- Conclusions -- Acknowledgements -- Notes -- References
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|a 7 When 'care' leads to 'chronicity': Exploring the changing contours of care of homeless people living on the streets in India.
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|a Managing Chronicity in Unequal States investigates how people live with chronic conditions in different contexts around the world, where judgements on human worth have long-lasting effects on people's wellbeing.
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|a Online resource; title from digital title page (viewed on March 17, 2022).
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|a JSTOR
|b Books at JSTOR All Purchased
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|a JSTOR
|b Books at JSTOR Open Access
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|a Chronically ill
|x Social conditions.
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|a Chronic diseases
|x Social aspects.
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|a Chronically ill
|x Mental health.
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|a Maladies chroniques
|x Aspect social.
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|a SOCIAL SCIENCE
|x Anthropology
|x Physical.
|2 bisacsh
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|a Chronic diseases
|x Social aspects
|2 fast
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|a Chronically ill
|x Mental health
|2 fast
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|a Chronically ill
|x Social conditions
|2 fast
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|b Electronic books.
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|a Montesi, Laura,
|e editor.
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|a Calestani, Melania,
|e editor.
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|i Print version:
|a Montesi, Laura.
|t Managing Chronicity in Unequal States.
|d London : UCL Press, ©2021
|z 9781800080300
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830 |
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|a Embodying inequalities.
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