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Privacy and the past : research, law, archives, ethics /
"In 2006, a HIPAA Compliance Officer in a rural Iowa county wanted to shut down a graduate student's research on a manuscript register of those admitted to a poor farm in the nineteenth century. The reason? It contained sensitive health information that could affect the well-being of livin...
| Clasificación: | Libro Electrónico |
|---|---|
| Autor principal: | |
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
New Brunswick, New Jersey :
Rutgers University Press,
2016.
|
| Colección: | Critical issues in health and medicine.
|
| Temas: | |
| Acceso en línea: | Texto completo |
MARC
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| 100 | 1 | |a Lawrence, Susan C., |e author. | |
| 245 | 1 | 0 | |a Privacy and the past : |b research, law, archives, ethics / |c Susan C. Lawrence. |
| 260 | |a New Brunswick, New Jersey : |b Rutgers University Press, |c 2016. | ||
| 300 | |a 1 online resource (x, 169 pages) | ||
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a computer |b c |2 rdamedia | ||
| 338 | |a online resource |b cr |2 rdacarrier | ||
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| 490 | 1 | |a Critical issues in health and medicine | |
| 504 | |a Includes bibliographical references and index. | ||
| 505 | 0 | |a Introduction : The Historians, the County, and the Dead -- Research, Privacy, and Federal Regulations -- Historians, the First Amendment, and Invasion of Privacy -- Archivists at the Gates -- Managing Privacy : Historians at Work -- Conclusion : Resistance. | |
| 520 | |a "In 2006, a HIPAA Compliance Officer in a rural Iowa county wanted to shut down a graduate student's research on a manuscript register of those admitted to a poor farm in the nineteenth century. The reason? It contained sensitive health information that could affect the well-being of living county residents. The 2003 HIPAA Privacy Rule did, in fact, protect this document from historians' prying eyes. In Privacy and the Past, Susan C. Lawrence explores why she found this experience so troubling. In the process, she explores historians' ethical obligations to their research subjects, both the living and the dead. She queries the extent to which we do and should control access to information about people as historical actors and as unwitting participants in past events. She questions who gets to decide what is revealed and what is kept hidden in decades-old records. She examines laws and court cases, and tackles archives and archivists. She looks at how demands to maintain individual privacy both protect and erase the identities of people whose stories make up the historical record. She encourages historians to vigorously resist any expansion of regulatory language that extends privacy protections to the dead. This book offers a critical analysis of the ways that broad privacy concerns shape how and when historians can understand individuals' lives as they created our collective American past."-- |c Provided by publisher | ||
| 588 | 0 | |a Online resource; title from digital title page (viewed on April 04, 2018). | |
| 546 | |a In English. | ||
| 590 | |a JSTOR |b Books at JSTOR Evidence Based Acquisitions | ||
| 590 | |a JSTOR |b Books at JSTOR All Purchased | ||
| 590 | |a JSTOR |b Books at JSTOR Demand Driven Acquisitions (DDA) | ||
| 650 | 0 | |a Historians |x Legal status, laws, etc. |z United States. | |
| 650 | 0 | |a History |x Research |x Law and legislation |z United States. | |
| 650 | 0 | |a Privacy, Right of |z United States. | |
| 650 | 7 | |a MEDICAL |x Ethics. |2 bisacsh | |
| 650 | 7 | |a SCIENCE |x History. |2 bisacsh | |
| 650 | 7 | |a LAW |x Privacy. |2 bisacsh | |
| 650 | 7 | |a MEDICAL |x History. |2 bisacsh | |
| 650 | 7 | |a LAW |x Constitutional. |2 bisacsh | |
| 650 | 7 | |a LAW |x Public. |2 bisacsh | |
| 650 | 7 | |a Historians |x Legal status, laws, etc. |2 fast |0 (OCoLC)fst00957700 | |
| 650 | 7 | |a History |x Research |x Law and legislation. |2 fast |0 (OCoLC)fst01937496 | |
| 650 | 7 | |a Privacy, Right of. |2 fast |0 (OCoLC)fst01077444 | |
| 651 | 7 | |a United States. |2 fast |0 (OCoLC)fst01204155 | |
| 776 | 0 | 8 | |i Print version: |a Lawrence, Susan C. |t Privacy and the past. |d New Brunswick, New Jersey : Rutgers University Press, 2016 |z 9780813574363 |z 0813574366 |w (DLC) 2015032497 |w (OCoLC)930257361 |
| 830 | 0 | |a Critical issues in health and medicine. | |
| 856 | 4 | 0 | |u https://jstor.uam.elogim.com/stable/10.2307/j.ctt1f1hdb9 |z Texto completo |
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