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Managing sickle cell disease in low-income families /
As many as 80,000 African Americans have sickle disease (SCD). Though the political activism of the 1960s and a major 1970s health campaign spurred demands for testing, treatment, and education programs, little attention has been given to how families cope with sickle cell trait or one of the sickle...
| Clasificación: | Libro Electrónico |
|---|---|
| Autor principal: | |
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
Philadelphia :
Temple University Press,
1994.
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| Colección: | Health, society, and policy.
|
| Temas: | |
| Acceso en línea: | Texto completo |
MARC
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| 100 | 1 | |a Hill, Shirley A. |q (Shirley Ann), |d 1947- |e author. | |
| 245 | 1 | 0 | |a Managing sickle cell disease in low-income families / |c Shirley A. Hill. |
| 260 | |a Philadelphia : |b Temple University Press, |c 1994. | ||
| 300 | |a 1 online resource (x, 225 pages). | ||
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a computer |b c |2 rdamedia | ||
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| 490 | 1 | |a Health, society, and policy | |
| 504 | |a Includes bibliographical references (pages 199-221) and indexes. | ||
| 505 | 0 | |a 1. Introduction -- 2. Sickle Cell Disease -- 3. The Mothers and Their Families -- 4. Diagnosing Sickle Cell Disease -- 5. Reproductive Decision Making -- 6. Caregiving for Children with SCD -- 7. Mediators of Caregiving Demands -- 8. Finding Social Support -- 9. Coping -- 10. Reconstructing SCD. | |
| 520 | |a As many as 80,000 African Americans have sickle disease (SCD). Though the political activism of the 1960s and a major 1970s health campaign spurred demands for testing, treatment, and education programs, little attention has been given to how families cope with sickle cell trait or one of the sickle cell diseases. This first study to give SCD a social, economic, and cultural context documents the daily lives of families living with this threatening illness. Specifically, Shirley A. | ||
| 520 | 8 | |a Hill examines how low-income, African American mothers with children suffering from this hereditary, incurable, and chronically painful disease, react to the diagnosis and manage their family's health care. | |
| 520 | 8 | |a The thirty-two mostly single mothers Hill studies survive in an inner-city world of social inequality. Despite limited means, they actively participate in, create, and define the social world they live in, their reality shaped by day-to-day caregiving. These women often encounter institutional roadblocks when seeking services and medical information. Still, they overcome these obstacles by utilizing such viable alternatives as sharing child care with relatives within established kinship networks. | |
| 520 | 8 | |a Highlighting the role of class, race, and gender in the illness experience, Hill interprets how these women react, redefine, or modify the objective scientific facts about SCD. She also reveals that within the cultural context of the African American community the revelation of the SCD trait or the diagnosis of one child often does not affect a woman's interpretation of her reproductive rights. | |
| 520 | 8 | |a While to those outside this community, having children in spite of a high risk of passing on SCD may seem disturbing, this study acknowledges and explains the relevance of child-bearing and motherhood to African American women's identity. | |
| 520 | 8 | |a Through in-depth interviews, Hill shows inventive women who find alternatives to traditional methods of caring for their children to successfully reduce their children's SCD symptoms and the strain of fitting in with their peers. A comprehensive account of SCD and its influence on daily and long-term decision-making emerge from Hill's interweaving of the women's voices and her own interpretive analysis. | |
| 588 | 0 | |a Print version record. | |
| 590 | |a JSTOR |b Books at JSTOR Demand Driven Acquisitions (DDA) | ||
| 590 | |a JSTOR |b Books at JSTOR All Purchased | ||
| 590 | |a JSTOR |b Books at JSTOR Evidence Based Acquisitions | ||
| 650 | 0 | |a Sickle cell anemia in children |x Social aspects |z United States. | |
| 650 | 0 | |a Sickle cell anemia in children |z United States |x Psychological aspects. | |
| 650 | 0 | |a Sickle cell anemia in children |x Patients |x Family relationships |z United States. | |
| 650 | 0 | |a Health and race |z United States |v Case studies. | |
| 650 | 0 | |a Sickle cell anemia in children |x Patients |x Home care |z United States. | |
| 650 | 0 | |a Sickle cell anemia. | |
| 650 | 0 | |a Families. | |
| 650 | 0 | |a Nuclear families. | |
| 650 | 0 | |a Poverty. | |
| 650 | 1 | 2 | |a Anemia, Sickle Cell |
| 650 | 2 | 2 | |a Caregivers |
| 650 | 2 | 2 | |a Family |
| 650 | 2 | 2 | |a Poverty |
| 650 | 2 | 2 | |a Social Support |
| 651 | 2 | |a United States | |
| 650 | 2 | |a Nuclear Family | |
| 650 | 6 | |a Drépanocytose chez l'enfant |x Aspect social |z États-Unis. | |
| 650 | 6 | |a Drépanocytose chez l'enfant |z États-Unis |x Aspect psychologique. | |
| 650 | 6 | |a Drépanocytose chez l'enfant |x Patients |x Relations familiales |z États-Unis. | |
| 650 | 6 | |a Santé et race |z États-Unis |v Études de cas. | |
| 650 | 6 | |a Drépanocytose chez l'enfant |x Patients |x Soins à domicile |z États-Unis. | |
| 650 | 6 | |a Drépanocytose. | |
| 650 | 6 | |a Familles. | |
| 650 | 6 | |a Pauvreté. | |
| 650 | 7 | |a poverty. |2 aat | |
| 650 | 7 | |a HEALTH & FITNESS |x Children's Health. |2 bisacsh | |
| 650 | 7 | |a HEALTH & FITNESS |x Health Care Issues. |2 bisacsh | |
| 650 | 7 | |a Sickle cell anemia |2 fast | |
| 650 | 7 | |a Poverty |2 fast | |
| 650 | 7 | |a Nuclear families |2 fast | |
| 650 | 7 | |a Families |2 fast | |
| 650 | 7 | |a Health and race |2 fast | |
| 650 | 7 | |a Sickle cell anemia in children |x Psychological aspects |2 fast | |
| 650 | 7 | |a Sickle cell anemia in children |x Social aspects |2 fast | |
| 651 | 7 | |a United States |2 fast | |
| 655 | 7 | |a Case studies |2 fast | |
| 776 | 0 | 8 | |i Print version: |a Hill, Shirley A. (Shirley Ann), 1947- |t Managing sickle cell disease in low-income families. |d Philadelphia : Temple University Press, 1994 |z 9781592131952 |w (DLC) 93037361 |w (OCoLC)28965325 |
| 830 | 0 | |a Health, society, and policy. | |
| 856 | 4 | 0 | |u https://jstor.uam.elogim.com/stable/10.2307/j.ctt14bs735 |z Texto completo |
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