Managing Chronicity in Unequal States : Ethnographic perspectives on caring /

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Managing Chronicity in Unequal States investigates how people live with chronic conditions in different contexts around the world, where judgements on human worth have long-lasting effects on people's wellbeing.

Detalles Bibliográficos
Clasificación:Libro Electrónico
Otros Autores: Montesi, Laura (Editor ), Calestani, Melania (Editor )
Formato: Electrónico eBook
Idioma:Inglés
Publicado: London : UCL Press, 2021.
Colección:Embodying inequalities.
Temas:
Chronically ill > Social conditions.
Chronic diseases > Social aspects.
Chronically ill > Mental health.
Maladies chroniques > Aspect social.
SOCIAL SCIENCE > Anthropology > Physical.
Chronic diseases > Social aspects
Chronically ill > Mental health
Chronically ill > Social conditions
Electronic books.
Acceso en línea:Texto completo
Tabla de Contenidos:
  • Cover
  • Half Title
  • Series Information
  • Title Page
  • Copyright Page
  • Contents
  • List of contributors
  • Foreword
  • References
  • Acknowledgements
  • Introduction
  • Defining and defying chronicity
  • Care and the politics of deservingness
  • Structure of the book
  • Concluding remarks
  • Notes
  • References
  • 1 A house of cards: Chronicity, care packages and a 'good life'
  • Background
  • Methods
  • Theoretical framework: Temporality, ethics and care
  • Clarissa's struggle and the house of cards
  • Temporal/spatial reconfiguration: a discussion
  • Relationality: a discussion
  • Conclusion
  • Notes
  • References
  • 2 (Un)Deservingness and disregard: Chronicity, hospice and possibilities for care on the American periphery
  • Deserving and undeserving of care
  • (Un)Deservingness, attention and disregard
  • Shaping a landscape of care through disregard
  • Disregarded costs and the disappearance of medical equipment
  • Claims to deservingness and bureaucratic mechanisms of disregard
  • Durable medical equipment 'within reach'
  • Snowbirds
  • 'The only way to be heard': Inaudibility and absent complaints
  • Ms Donovan
  • Conclusion
  • Notes
  • References
  • 3 Publicly privatised: Relative care support and the neoliberal reform in Finland
  • Introduction
  • Two facets of privatisation in the care system
  • Relative caregivers in Archipelago Town and municipal support
  • Families, relatives and caregiving practices in Archipelago Town
  • Struggling with closed doors
  • The professionalism of relative care
  • The difference between relative caregivers and care workers
  • Conclusion
  • Notes
  • References
  • 4 The 'hassle' of 'good' care in dementia: Negotiating relatedness in the navigation of bureaucratic systems of support
  • Introduction
  • 'Official' paperwork
  • The fuss and trust of relatedness
  • 'Getting it all sorted': (Mis)adventures in bureaucratic hassle
  • The state as a bad relative
  • Conclusion
  • References
  • 5 Assemblages of care around albinism: Kin-based networks and (in)dependence in contemporary Tanzania
  • Introduction
  • Multiple assemblages of care around people with albinism
  • The reduction of institutional care and the 'NGOisation' of the nation state
  • Kin-based care and humanitarian discourses in Ilula: Florentina's experiences
  • (In)dependence in Dar es Salaam: Daudi's self-care, care for and care about others
  • Conclusion
  • Note
  • References
  • 6 Alcoholism and evangelical healing in Indigenous Mexico: Chronicity and care at the margins of the state
  • From comorbidity to syndemics of alcoholism and marginality
  • Five centuries of alcoholisation
  • Drinking at the margins
  • Care for whom? Drinking patterns and the possibility of care
  • Medical (un)care: Governmental health providers
  • Evangelicals and alcohol: Healing within the community
  • Conclusions
  • Acknowledgements
  • Notes
  • References

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