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The decision trap : genetic education and its social consequences /
The Decision Trap questions a dogma of our time: the assumption that genetic education empowers citizens and increases their autonomy. It argues that professional instructions about genes, genetic risks, and genetic test options convey a genetic worldview which destroys self-confidence and makes cli...
| Clasificación: | Libro Electrónico |
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| Autor principal: | |
| Otros Autores: | , |
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
Exeter, England :
Imprint Academic,
2015.
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| Temas: | |
| Acceso en línea: | Texto completo |
Tabla de Contenidos:
- Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics.
- 2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information.
- 3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management.
- 3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available.