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Life to be lived : Challenges and choices for patients and carers in life-threatening illnesses.

How do people face life-limiting illness and death? This challenging question is discussed in-depth in Life to be Lived by looking at the feelings, hopes, fears and stresses associated with life-threatening illnesses, often experienced by patients and their carers. Drawn from research, clinical, and...

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Detalles Bibliográficos
Clasificación:Libro Electrónico
Autor principal: Proot, Catherine
Otros Autores: Yorke, Michael
Formato: Electrónico eBook
Idioma:Inglés
Publicado: Oxford : OUP Oxford, 2013.
Temas:
Acceso en línea:Texto completo

MARC

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245 1 0 |a Life to be lived :  |b Challenges and choices for patients and carers in life-threatening illnesses. 
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505 0 |a Cover; Title Page; Copyright Page; Foreword; Preface; Acknowledgements; Introduction; Contents; Part 1 The patient experience; 1 The challenge of illness and pain; Help me to live, not to stop dying; Pain; Curing and healing; Stress provoked by treatments; Psychological needs in treatment; 2 All may not be lost; Valuing patients as people; Some personal sources of strength; Absorbing interests; Relationship and communication; Supportive and/or challenging characteristics; 3 Trials and adjustment; Inner turmoil; A cancer journey?; Longing for normality and yearning for safety. 
505 8 |a A network of support4 Towards a changed outlook; The part of life one has not lived; Discovering meaning; A sense of achievement; Recognising one's identity and status; Part 2 The impact on family carers; 5 Demands on the family; Diagnosis and its demands; Logistics; Finance; Teamwork; 6 Lives taken over; Changing experience of time; Priorities and decision making; The reality of unpredictability; 7 Coping with change; Denial and overprotection; Interdependence and mutual impact; Facing a new future; 8 Some personal consequences for the carer; Fatigue and self-neglect; Guilt; Loss; Rewards. 
505 8 |a Part 3 The professional carers and their roles9 Challenges for the professional carer; Patient-centred care; Finding a common language; Creating and holding a safe space; Flexibility in approach and response; Coping with a backlog of grief; Taking care of themselves; 10 The power and limitations of words; Beyond words ... metaphor and symbol; The metaphorical language of rituals; Beyond communication, encounter; 11 Talking with patients; Breaking bad news; Sharing information; Helping people to be heard; Talking about illness in the family; 12 Chaplaincy and spiritual care. 
505 8 |a The role of the chaplainCaution not to impose; Spiritual care as giving meaning; Regrets and reparation; Needs, spiritual and/or religious; Overlap of roles; Death and dying; Part 4 Boundaries and resources; 13 Blurred boundaries; Expectations and projections; Shared responsibility; Individual and institution; Information and self-disclosure; The challenge of visiting the dying; 14 A wealth of resources; From being the subject of suffering to an observer of pain; Professional and peer support; Hands-on involvement; Ways to express feelings and find new meaning; Intimacy; Acceptance. 
505 8 |a Part 5 The next step15 The next step?; The last great adventure; Grief and bereavement; In conclusion; Postscript; Index. 
520 |a How do people face life-limiting illness and death? This challenging question is discussed in-depth in Life to be Lived by looking at the feelings, hopes, fears and stresses associated with life-threatening illnesses, often experienced by patients and their carers. Drawn from research, clinical, and pastoral experiences, the authors examine the process of adjustment that patients and their families go through in major illnesses and when approaching the end of life. Life to be Lived is written in an accessible style using many stories shared by counsellors, chaplains, patients and relatives. De. 
504 |a Includes bibliographical references and index. 
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