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Genetic Data and the Law : a Critical Perspective on Privacy Protection.
Mark Taylor demonstrates how research using genetic data can be reconciled with proper privacy protection.
| Clasificación: | Libro Electrónico |
|---|---|
| Autor principal: | |
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
Cambridge :
Cambridge University Press,
2012.
|
| Colección: | Cambridge bioethics and law.
|
| Temas: | |
| Acceso en línea: | Texto completo |
MARC
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| 049 | |a UAMI | ||
| 100 | 1 | |a Taylor, Mark. | |
| 245 | 1 | 0 | |a Genetic Data and the Law : |b a Critical Perspective on Privacy Protection. |
| 260 | |a Cambridge : |b Cambridge University Press, |c 2012. | ||
| 300 | |a 1 online resource (248 pages) | ||
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a computer |b c |2 rdamedia | ||
| 338 | |a online resource |b cr |2 rdacarrier | ||
| 490 | 1 | |a Cambridge Bioethics and Law ; |v v. 16 | |
| 505 | 0 | |a Cover; Genetic Data and the Law; Series; Title; Copyright; Dedication; Contents; Preface; 1 Introduction; Genetic data; The legal protection of genetic privacy; Assessing privacy protection; Public cf. private interest; Structure; Part I: The context; 2 Privacy; What is privacy?; Privacy as control; Value and control; Privacy as a norm of exclusivity; Norms and the transactional variable; Norms, transactions and the relational variable; Privacy, public interest and legitimacy; Public expectations and genetic research; Reflection; 3 Genetic data; Data and information. | |
| 505 | 8 | |a Genetic data cf. genetic informationWhat is genetic information?; What cf. whether; Genetic information as an indicator; A composite understanding of genetic information; Private vs. observable cf. sensitive vs. non-sensitive; Personal genetic information vs. human genetic information; Changing access to genetic information; Reflection; 4 The law; SECTION I A LEGAL CONCEPT OF PRIVACY; Universal Declaration of Human Rights; The European Convention for the Protection of Human Rights and Fundamental Freedoms; Research and proportionate interference; Research and data protection. | |
| 505 | 8 | |a The Data Protection Directive (95/46/EC)What is personal data?; Multiple data subjects and biological samples; Personal data and norms of exclusivity; Legitimate data processing; Supplementary material?; Other principles of data protection; Rights to access and to object; SECTION I I INTERNATIONAL LEGAL STANDARDS APPLICABLE SPECIFICALLY TO GENETIC DATA; Transactional variable; Relational variable; Reflections; Part II: The critique; 5 Data in common; Terminology; Family members (and other affected individuals); Structure; SECTION I DATA SUBJECTS AND GENETIC DATA IN COMMON. | |
| 505 | 8 | |a Defining data subjectsCan data 'relate to' more than one individual?; Can genetic data 'relate to' more than one individual?; SECTION I I WHY MIGHT RECOGNISING MULTIPLE (GENETIC) DATA SUBJECTS BE PROBLEMATIC?; English law and secondary data subjects; Durant v. FSA [2003]; Passing the threshold; Problems with not recognising multiple data subjects; Inadequate protection; Alternative responses; SECTION I I I ADDRESSING THE BALANCE; How should data be understood to 'relate to' another individual in order for that data to be personal data?; Expanding the exemptions; 6 Anonymity; Structure. | |
| 505 | 8 | |a SECTION I TERMINOLOGYSECTION I I DATA PROTECTION AND ANONYMOUS DATA; The burden of compliance and the UK implementation of identifiability; Can a data controller meet responsibilities to an anonymous data subject?; Notification; Access and objection; Reasons to protect anonymous data; Zorro's mask and re-identification; Fresh association; Anonymity and failure to protect group interests; Private data cf. identifiable data; Are we overprotecting identifiability?; Reflection; 7 Human tissue; Structure; SECTION I HUMAN BIOLOGICAL MATERIAL, SAMPLES, DATA AND INFORMATION. | |
| 500 | |a Section i i personal data, biological samples and normative expectations. | ||
| 520 | |a Mark Taylor demonstrates how research using genetic data can be reconciled with proper privacy protection. | ||
| 588 | 0 | |a Print version record. | |
| 504 | |a Includes bibliographical references and index. | ||
| 590 | |a eBooks on EBSCOhost |b EBSCO eBook Subscription Academic Collection - Worldwide | ||
| 650 | 0 | |a Medical genetics |x Law and legislation. | |
| 650 | 0 | |a Medical records |x Access control. | |
| 650 | 0 | |a Genetic engineering |x Law and legislation. | |
| 650 | 0 | |a Biotechnology |x Law and legislation. | |
| 650 | 0 | |a Human chromosome abnormalities |x Diagnosis |x Law and legislation. | |
| 650 | 0 | |a Human genetics |x Government policy. | |
| 650 | 0 | |a Privacy, Right of. | |
| 650 | 0 | |a Data protection |x Law and legislation. | |
| 650 | 6 | |a Dossiers médicaux |x Accès |x Contrôle. | |
| 650 | 7 | |a LAW |x Medical Law & Legislation. |2 bisacsh | |
| 650 | 7 | |a Biotechnology |x Law and legislation. |2 fast |0 (OCoLC)fst00832754 | |
| 650 | 7 | |a Data protection |x Law and legislation. |2 fast |0 (OCoLC)fst00887963 | |
| 650 | 7 | |a Genetic engineering |x Law and legislation. |2 fast |0 (OCoLC)fst00940036 | |
| 650 | 7 | |a Human chromosome abnormalities |x Diagnosis |x Law and legislation. |2 fast |0 (OCoLC)fst00962910 | |
| 650 | 7 | |a Human genetics |x Government policy. |2 fast |0 (OCoLC)fst00963079 | |
| 650 | 7 | |a Medical genetics |x Law and legislation. |2 fast |0 (OCoLC)fst01014136 | |
| 650 | 7 | |a Medical records |x Access control. |2 fast |0 (OCoLC)fst01014549 | |
| 650 | 7 | |a Privacy, Right of. |2 fast |0 (OCoLC)fst01077444 | |
| 776 | 0 | 8 | |i Print version: |a Taylor, Mark. |t Genetic Data and the Law : A Critical Perspective on Privacy Protection. |d Cambridge : Cambridge University Press, ©2012 |z 9781107007116 |
| 830 | 0 | |a Cambridge bioethics and law. | |
| 856 | 4 | 0 | |u https://ebsco.uam.elogim.com/login.aspx?direct=true&scope=site&db=nlebk&AN=438984 |z Texto completo |
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