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EBSCO_ocn769344036 |
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|a Achieving justice in genomic translation :
|b re-thinking the pathway to benefit /
|c edited by Wylie Burke [and others].
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|a Oxford :
|b Oxford University Press, USA,
|c 2011.
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|a 1 online resource (223 pages)
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|a This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce.
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|a Cover; Contents; 1. Making Good on the Promise of Genetics: Justice in Translational Science; 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo; 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter?; 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science; Commentary on the Discovery Phase of Research; 5. Early Assessment of Translational Opportunities; 6. The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing.
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|a Includes bibliographical references and index.
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|a English.
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|a Human genetics
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|a Genetic screening
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|a Génétique humaine
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|a Génomique
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|a Human genetics
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|a Burke, Wylie.
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|a Edwards, Kelly A.
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|a Goering, Sara.
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776 |
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8 |
|i Print version:
|a Burke, Wylie.
|t Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit.
|d Oxford : Oxford University Press, USA, ©2011
|z 9780195390384
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