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Aniridia and WAGR syndrome : a guide for patients and families /

Our hope is to enlighten and encourage those affected by aniridia and WAGR Syndrome by providing patient support and medical information. There is information to inform parents, teachers, doctors, employers, and the public about aniridia and what it is like to live with it. Several renowned doctors...

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Detalles Bibliográficos
Clasificación:Libro Electrónico
Otros Autores: Nerby, Jill Ann, Otis, Jessica J.
Formato: Electrónico eBook
Idioma:Inglés
Publicado: Oxford [England] ; New York : Oxford University Press, 2010.
Temas:
Acceso en línea:Texto completo

MARC

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245 0 0 |a Aniridia and WAGR syndrome :  |b a guide for patients and families /  |c edited by Jill Ann Nerby and Jessica J. Otis. 
260 |a Oxford [England] ;  |a New York :  |b Oxford University Press,  |c 2010. 
300 |a 1 online resource (xv, 191 pages) :  |b illustrations 
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504 |a Includes bibliographical references and index. 
505 0 |a Aniridia, WAGR syndrome, and associated conditions -- Inspirations -- Aniridia-epidemiology and genetics -- Personal experiences of individuals with aniridia -- Glaucoma problems associated with aniridia -- Cornea and lens problems in aniridia -- Low vision and aniridia -- Psychological support -- Parents' experiences -- Parents' and families' guide -- Teachers' and school administrators' guide -- Jill Nerby and Aniridia Foundation Internatinoal -- Other support services. 
520 |a Our hope is to enlighten and encourage those affected by aniridia and WAGR Syndrome by providing patient support and medical information. There is information to inform parents, teachers, doctors, employers, and the public about aniridia and what it is like to live with it. Several renowned doctors contribute medical chapters. Personal experiences from individuals with aniridia and parents with children with aniridia provide encouragement. Contact information for Aniridia Foundation International (AFI) is included. When a child is born without a complete iris, it is usually a symptom of a broa. 
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650 0 |a Syndromes  |v Popular works. 
650 2 |a Aniridia 
650 2 |a WAGR Syndrome 
650 6 |a Iris (Anatomie)  |x Maladies  |v Ouvrages de vulgarisation. 
650 6 |a Maladies génétiques  |v Ouvrages de vulgarisation. 
650 6 |a Syndromes  |v Ouvrages de vulgarisation. 
650 6 |a Aniridie. 
650 6 |a Syndrome WAGR. 
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650 7 |a Syndromes.  |2 fast  |0 (OCoLC)fst01141135 
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700 1 |a Nerby, Jill Ann. 
700 1 |a Otis, Jessica J. 
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