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170527s2014 dcu o 000 0 eng d |
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|a EBLCP
|b eng
|e pn
|c EBLCP
|d MERUC
|d OCLCQ
|d LOA
|d OCLCO
|d OCLCF
|d OCLCO
|d OCLCQ
|d OCLCO
|d OCLCL
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|a 9781587634338
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|a 1587634333
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|a AU@
|b 000067958890
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|a (OCoLC)988174729
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|a RA404.A1
|b .R445 2014
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|a 613.424
|2 23
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|a UAMI
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|a Quality/AHRQ, Agency for Healthcare Research and.
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|a Registries for Evaluating Patient Outcomes :
|b a User's Guide.
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|a 3rd ed.
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|a Washington, D.C. :
|b U.S. Dept. of Health and Human Services,
|c 2014.
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|a 1 online resource (463 pages)
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|a text
|b txt
|2 rdacontent
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|a computer
|b c
|2 rdamedia
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|a online resource
|b cr
|2 rdacarrier
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|a Print version record.
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|a Cover; Copyright; Contents; Executive Summary; Section I. Creating Registries; Chapter 1. Patient Registries; 1. Introduction; 2. Current Uses for Patient Registries; 3. Taxonomy for Patient Registries; 4. Patient Registries and Policy Purposes; 5. Global Registries; 6. Summary; References for Chapter 1; Chapter 2. Planning a Registry; 1. Introduction; 2. Steps in Planning a Registry; 3. Summary; Case Example for Chapter 2; Case Example 1. Creating a Registry To Fulfill Multiple Purposes and Using a Publications Committee To Review Data Requests; References for Chapter 2.
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|a Chapter 3. Registry Design1. Introduction; 2. Research Questions Appropriate for Registries; 3. Translating Clinical Questions Into Measurable Exposures and Outcomes; 4. Finding the Necessary Data; 5. Resources and Efficiency; 6. Study Designs for Registries; 7. Choosing Patients for Study; 8. Sampling; 9. Registry Size and Duration; 10. Internal and External Validity; 11. Summary; Case Examples for Chapter 3; Case Example 2. Designing a Registry for a Health Technology Assessment; Case Example 3. Developing Prospective Nested Studies in Existing Registries.
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|a Case Example 4. Designing a Registry To Address Unique Patient Enrollment ChallengesReferences for Chapter 3; Chapter 4. Data Elements for Registries; 1. Introduction; 2. Identifying Domains; 3. Selecting Data Elements; 4. Registry Data Map; 5. Pilot Testing; 6. Summary; Case Examples for Chapter 4; Case Example 5. Selecting Data Elements for a Registry; Case Example 6. Understanding the Needs and Goals of Registry Participants; Case Example 7. Using Standardized Data Elements in a Registry; References for Chapter 4; Chapter 5. Use of Patient-Reported Outcomes in Registries; 1. Introduction.
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|a 2. The Role of PROs in Registries3. What Methods Are Available To Collect PROs and Which Is Best?; 4. Which PRO Measure(s) Should Be Selected?; 5. Example of PRO Use in a Registry; Case Examples for Chapter 5; Case Example 8. Developing and Validating a Patient-Administered Questionnaire; Case Example 9. Using Validated Measures To Collect Patient-Reported Outcomes; Case Example 10. Challenges in the Collection of PROs in a Longitudinal Registry; Case Example 11. Collecting PRO Data in a Sensitive Patient Population; References for Chapter 5; Chapter 6. Data Sources for Registries.
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|a 1. Introduction2. Types of Data; 3. Data Sources; 4. Other Considerations for Secondary Data Sources; 5. Summary; Case Example for Chapter 6; Case Example 12. Using Claims Data Along With Patient-Reported Data To Identify Patients; References for Chapter 6; Section II. Legal and Ethical Considerations for Registries; Chapter 7. Principles of Registry Ethics, Data Ownership, and Privacy; 1. Introduction; 2. Ethical Concerns Relating to Health Information Registries; 3. Applicable Regulations; 4. Registry Transparency, Oversight, and Data Ownership; 5. Conclusions.
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|a 6. Summary of Privacy Rule and Common Rule Requirements.
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590 |
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|a ProQuest Ebook Central
|b Ebook Central Academic Complete
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650 |
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|a Diseases
|x Reporting.
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650 |
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|a Disease Notification
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650 |
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|a Maladies
|x Déclaration.
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650 |
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|a Diseases
|x Reporting
|2 fast
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700 |
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|a Gliklich, Richard E.
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|a Dreyer, Nancy A.
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|a Leavy, Michelle B.
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758 |
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|i has work:
|a Registries for evaluating patient outcomes (Text)
|1 https://id.oclc.org/worldcat/entity/E39PCFyh8qqmvTdgFQcjyfXfdP
|4 https://id.oclc.org/worldcat/ontology/hasWork
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776 |
0 |
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|i Print version:
|a Quality/AHRQ, Agency for Healthcare Research and.
|t Registries for Evaluating Patient Outcomes : A User's Guide.
|d Washington, D.C. : U.S. Dept. of Health and Human Services, ©2014
|
856 |
4 |
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|u https://ebookcentral.uam.elogim.com/lib/uam-ebooks/detail.action?docID=4861037
|z Texto completo
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938 |
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|a EBL - Ebook Library
|b EBLB
|n EBL4861037
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994 |
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|a 92
|b IZTAP
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