Issues in returning individual results from genome research using population-based banked specimens, with a focus on the National Health and Nutrition Examination Survey : workshop summary /

"Population surveys traditionally collect information from respondents about their circumstances, behaviors, attitudes, and other characteristics. In recent years, many surveys have been collecting not only questionnaire answers, but also biologic specimens such as blood samples, saliva, and bu...

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Detalles Bibliográficos
Clasificación:Libro Electrónico
Autores Corporativos: Guidelines for Returning Individual Results From Genome Research Using Population-Based Banked Specimens (Workshop) Washington, D.C.) (Autor), National Center for Health Statistics (U.S.) (sponsoring body.)
Otros Autores: Kinsella, Kevin (rapporteur.)
Formato: Electrónico Congresos, conferencias eBook
Idioma:Inglés
Publicado: Washington, D.C. : The National Academies Press, [2014]
Temas:
Genomics > Research > Congresses.
Genetic epidemiology > Congresses.
Medical genetics.
Genetics, Medical
Génomique > Recherche > Congrès.
Épidémiologie génétique > Congrès.
Génétique médicale.
HEALTH & FITNESS > Diseases > General.
MEDICAL > Clinical Medicine.
MEDICAL > Diseases.
MEDICAL > Evidence-Based Medicine.
MEDICAL > Internal Medicine.
Medical genetics
Genetic epidemiology
Congress
proceedings (reports)
Conference papers and proceedings
Conference papers and proceedings.
Actes de congrès.
Acceso en línea:Texto completo
Tabla de Contenidos:
  • Genomics in Population-Based Data Collection: The Example of the National Health and Nutrition Examination Survey
  • Perspectives on Returning Genome-Based Research Results
  • Framing the Discussion
  • How Is NHANES Similar to/Different from Other Population-Based Studies?
  • Issues for NHANES
  • The Logistics of Returning Genomic Results from NHANES
  • Special Considerations for Reporting of Results in NHANES
  • Summary of Presentations and Discussion
  • Appendix A: Workshop Agenda
  • Appendix B: List of Registrants
  • Appendix C: Biographical Sketches of Steering Committee Members and Presenters
  • Committee on National Statistics.

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