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The Connected Self : the Ethics and Governance of the Genetic Individual.
Heather Widdows suggests new ethical frameworks for genetic governance, to replace those that offer little protection and permit significant injustice.
| Clasificación: | Libro Electrónico |
|---|---|
| Autor principal: | |
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
Cambridge :
Cambridge University Press,
2012.
|
| Colección: | Cambridge bioethics and law.
|
| Temas: | |
| Acceso en línea: | Texto completo |
MARC
| LEADER | 00000cam a2200000Mi 4500 | ||
|---|---|---|---|
| 001 | EBOOKCENTRAL_ocn823724306 | ||
| 003 | OCoLC | ||
| 005 | 20240329122006.0 | ||
| 006 | m o d | ||
| 007 | cr |n||||||||| | ||
| 008 | 130109s2012 enk o 000 0 eng d | ||
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| 019 | |a 828928491 | ||
| 020 | |a 9781139615709 | ||
| 020 | |a 113961570X | ||
| 020 | |a 9781139051798 |q (ebook) | ||
| 020 | |a 1139051792 |q (ebook) | ||
| 020 | |a 9781107008601 |q (hardback) | ||
| 020 | |a 1107008603 |q (hardback) | ||
| 029 | 1 | |a AU@ |b 000052917836 | |
| 029 | 1 | |a AU@ |b 000062362640 | |
| 035 | |a (OCoLC)823724306 |z (OCoLC)828928491 | ||
| 050 | 4 | |a R725.5 .W532 2012 | |
| 082 | 0 | 4 | |a 174.28 |
| 049 | |a UAMI | ||
| 100 | 1 | |a Widdows, Heather. | |
| 245 | 1 | 4 | |a The Connected Self : |b the Ethics and Governance of the Genetic Individual. |
| 260 | |a Cambridge : |b Cambridge University Press, |c 2012. | ||
| 300 | |a 1 online resource (222 pages) | ||
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a computer |b c |2 rdamedia | ||
| 338 | |a online resource |b cr |2 rdacarrier | ||
| 490 | 1 | |a Cambridge Bioethics and Law | |
| 505 | 0 | |a Cover; Contents; Preface; Acknowledgements; Introduction; The claims of the connected self; The structure of the connected self; 1 The individual self and its critics; Introduction; The individual, separate self; Feminism; Virtue ethics; Conclusion; 2 The individualist assumptions of ethical frameworks; Promotion of a narrow individual model; Development of the individual model; Duty to the individual patient; Methodology; Simple and easy; The choice model; The limits of choice; Fear of paternalism; Conclusion; 3 The genetic self is the connected self; Introduction. | |
| 505 | 8 | |a Genetic material and informationValuable material and information; Genetic information as shared information; The individual self (again); Personalised medicine; Genetic information is identifying; Confusions regarding anonymisation; Possibilities of identification; Genetic exceptionalism; The extent of sharing; Conclusion; 4 The failures of individual ethics in the genetic era; Introduction; Informed consent; Respecting connected others; Group goods; Informed consent and biobanking; Future-orientated; A research resource, not a research project; Withdrawal; Broad consent; Beyond consent. | |
| 505 | 8 | |a ConfidentialityThe shared nature of genetic material: implications; The identifying nature of genetic material: implications; The Icelandic example; Conclusion; 5 The communal turn; Introduction; The "communal turn" in bioethics; Emerging models in the communal turn; Expanding consent and to families and groups; Group consent in research; Family consent; Problems with group consent; Collapses into individual consent; Consenting for the group; Protecting vulnerable individuals in groups; Group consent is still consent; Exploitation; Conclusion; 6 Developing alternatives: benefit sharing. | |
| 505 | 8 | |a IntroductionBenefit sharing; Development of benefit sharing; Types of benefit sharing; Shared patenting: the PXE case; Strengths of benefit sharing; Recognises rights and interests of connected persons; Has the potential to address the "one-off" problem; Flexible and appropriate; Overcoming some worries of inducement to participate; Weaknesses of benefit sharing; Complexity; Global/local tension; Property and commodification; Conclusion; 7 Developing alternatives: trust; Introduction; The trust model; The development of "trust" from "gift"; Versions of trust; The shareholder model. | |
| 505 | 8 | |a The stakeholder approachUK Biobank; Strengths of trust; Includes different groups and individuals; Not "one-off"; Control without ownership; Weaknesses of trust; Collapse into broad consent; Mass withdrawal; Conclusion; 8 The ethical toolbox part one: recognising goods and harms; Introduction; Groups and vulnerable individuals; Types of groups and the goods which attach to them; Human rights framework; Corporate groups and their goods; Collective groups and their goods; Conclusion; 9 The ethical toolbox part two: applying appropriate practices; Introduction; The ethical toolbox method. | |
| 500 | |a Advantages of the ethical toolbox. | ||
| 520 | |a Heather Widdows suggests new ethical frameworks for genetic governance, to replace those that offer little protection and permit significant injustice. | ||
| 588 | 0 | |a Print version record. | |
| 590 | |a ProQuest Ebook Central |b Ebook Central Academic Complete | ||
| 650 | 0 | |a Medical ethics. | |
| 650 | 0 | |a Human genetics |x Research |x Moral and ethical aspects. | |
| 650 | 2 | |a Ethics, Medical | |
| 650 | 6 | |a Éthique médicale. | |
| 650 | 6 | |a Génétique humaine |x Recherche |x Aspect moral. | |
| 650 | 7 | |a Human genetics |x Research |x Moral and ethical aspects |2 fast | |
| 650 | 7 | |a Medical ethics |2 fast | |
| 758 | |i has work: |a The connected self (Text) |1 https://id.oclc.org/worldcat/entity/E39PCGbT7J86GQJpFfrMpvGGpP |4 https://id.oclc.org/worldcat/ontology/hasWork | ||
| 776 | 0 | 8 | |i Print version: |a Widdows, Heather. |t Connected Self : The Ethics and Governance of the Genetic Individual. |d Cambridge : Cambridge University Press, ©2012 |z 9781107008601 |
| 830 | 0 | |a Cambridge bioethics and law. | |
| 856 | 4 | 0 | |u https://ebookcentral.uam.elogim.com/lib/uam-ebooks/detail.action?docID=1099844 |z Texto completo |
| 938 | |a Askews and Holts Library Services |b ASKH |n AH24956433 | ||
| 938 | |a Askews and Holts Library Services |b ASKH |n AH28321729 | ||
| 938 | |a Askews and Holts Library Services |b ASKH |n AH33350982 | ||
| 938 | |a ProQuest Ebook Central |b EBLB |n EBL1099844 | ||
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| 938 | |a YBP Library Services |b YANK |n 9996680 | ||
| 994 | |a 92 |b IZTAP | ||