Populations and Genetics : Legal and Socio-Ethical Perspectives.

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Thirty-five papers from the third International DNA Sampling Conference, held in Montreal in September 2002, provide a critical discussion of the socio-ethical and legal issues surrounding DNA sampling in communities and populations around the globe. Contributors address topics related to biobanks a...

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Detalles Bibliográficos
Clasificación:Libro Electrónico
Otros Autores: Knoppers, Bartha Maria (Editor )
Formato: Electrónico eBook
Idioma:Inglés
Publicado: BRILL 2003.
Temas:
Medical genetics > Law and legislation > Congresses.
DNA fingerprinting > Law and legislation > Congresses.
Human population genetics > Moral and ethical aspects > Congresses.
Génétique des populations humaines > Aspect moral > Congrès.
DNA fingerprinting > Law and legislation
Medical genetics > Law and legislation
Conference papers and proceedings
Acceso en línea:Texto completo
Tabla de Contenidos:
  • Acknowledgements
  • In memoriam
  • Prologue
  • Contents
  • Section 1
  • Of Biobanks and Databases
  • UK DNA Sample Collections for Research
  • Estonian Genome Project
  • Large Scale Health Status Description and DNA Collection
  • Surveying the Population Biobankers
  • The Israeli DNA and Cell Line Collection: A Human Diversity Repository
  • DNA Data Bank of Japan as an Indispensable Public Database
  • A Survey of the Variability of DNA Banks Worldwide
  • An Empirical Survey on Biobanking of Human Genetic Material and Data in Six EU Countries
  • Mutation Databases and Ethical Considerations.
  • Section 2
  • Of Populations and Communities
  • Community Engagement in Genetic Research: The "Slow Code" of Research Ethics?
  • Competing Perspectives on Reasons for Participation and Non-Participation in the North Cumbria Community Genetics Project
  • The Engagement of Consumers in Genetics Education: Lessons Learned
  • Racial Profiling of DNA Samples : Will it Affect Scientific Knowledge About Human Genetic Variation?
  • Problematizing the Notion of "Community" in Research Ethics
  • On the Intersection of Privacy, Consent, Commerce and Genetics Research.
  • A Presumed-Consent Model for Regulating Informed Consent of Genetic Research Involving DNA Banking
  • Ethical and Legal Issues in Genetic Biobanking
  • Do the Ethical Duties of Donor, and Administrators, Depend on Whether the Database is Public or Private?
  • Public Attitudes to Participating in UK Biobank : A DNA Bank, Lifestyle and Morbidity Database on 500,000 Members of the UK Public Aged 45-69
  • Section 3
  • Of Commerce, Patents and Benefit-Sharing
  • Commercial Biobanks and Genetic Research: Banking Without Checks?
  • PXE International : Harnessing Intellectual Property Law for Benefit-Sharing
  • Advances in Science and Progress of Humanity: A Global Perspective on DNA Sampling
  • Benefit-Sharing in the New Genomic Marketplace: Expanding the Ethical Frame of Reference
  • Harmonizing Commercialisation and Gene Patent Policy with Other Social Goals
  • Preliminary Data on U.S. DNA Based Patents and Plans for a Survey of Licensing Practices
  • Towards a Universal Definition of "Benefit-Sharing"
  • Do Patents Encourage or Inhibit Genomics as a Global Public Good?
  • Patents and Benefit-Sharing as a Challenge for Corporate Ethics
  • Pharmaceutical Patents and Benefit-Sharing: Evolution of Drug Accessibility in Brazil since the 1980's
  • Reconciling Social Justice and Economic Opportunism: Regulating the Newfoundland Genome
  • Section 4
  • Of Information and Discrimination
  • Attitudes to Genetic Research and Uses of Genetic Information: Support, Concerns and Genetic Discrimination
  • Genetic Information and Insurance: Some Issues
  • Discrimination
  • "Genetic Discrimination" in an International Context.

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