Cargando…
Populations and Genetics : Legal and Socio-Ethical Perspectives.
Thirty-five papers from the third International DNA Sampling Conference, held in Montreal in September 2002, provide a critical discussion of the socio-ethical and legal issues surrounding DNA sampling in communities and populations around the globe. Contributors address topics related to biobanks a...
| Clasificación: | Libro Electrónico |
|---|---|
| Otros Autores: | |
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
BRILL
2003.
|
| Temas: | |
| Acceso en línea: | Texto completo |
MARC
| LEADER | 00000cam a2200000M 4500 | ||
|---|---|---|---|
| 001 | EBOOKCENTRAL_ocn814454029 | ||
| 003 | OCoLC | ||
| 005 | 20240329122006.0 | ||
| 006 | m o d | ||
| 007 | cr un|---uuuuu | ||
| 008 | 121012s2003 xx o 000 0 eng d | ||
| 040 | |a IDEBK |b eng |e pn |c IDEBK |d OCLCQ |d EBLCP |d OCLCQ |d MERUC |d ZCU |d ICG |d OCLCO |d OCLCF |d AU@ |d OCLCQ |d DKC |d OCLCQ |d QGK |d OCLCO |d OCLCQ |d OCLCO | ||
| 019 | |a 1259141989 | ||
| 020 | |a 1280465328 | ||
| 020 | |a 9781280465321 | ||
| 020 | |a 9786610465323 | ||
| 020 | |a 6610465320 | ||
| 020 | |a 1423721683 | ||
| 020 | |a 9781423721680 | ||
| 020 | |a 9047402936 | ||
| 020 | |a 9789047402930 | ||
| 024 | 7 | |a 10.1163/9789047402930 |2 DOI | |
| 029 | 1 | |a AU@ |b 000062560946 | |
| 029 | 1 | |a DEBBG |b BV044082497 | |
| 035 | |a (OCoLC)814454029 |z (OCoLC)1259141989 | ||
| 050 | 4 | |a TL236.28 | |
| 072 | 7 | |a LBB |2 bicssc | |
| 072 | 7 | |a LAW |x 051000 | |
| 072 | 7 | |a POL |x 035010 | |
| 082 | 0 | 4 | |a 796.72 |
| 049 | |a UAMI | ||
| 245 | 0 | 0 | |a Populations and Genetics : |b Legal and Socio-Ethical Perspectives. |
| 260 | |b BRILL |c 2003. | ||
| 300 | |a 1 online resource (669 pages) | ||
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a computer |b c |2 rdamedia | ||
| 338 | |a online resource |b cr |2 rdacarrier | ||
| 505 | 0 | |a Acknowledgements -- In memoriam -- Prologue -- Contents -- Section 1 -- Of Biobanks and Databases -- UK DNA Sample Collections for Research -- Estonian Genome Project -- Large Scale Health Status Description and DNA Collection -- Surveying the Population Biobankers -- The Israeli DNA and Cell Line Collection: A Human Diversity Repository -- DNA Data Bank of Japan as an Indispensable Public Database -- A Survey of the Variability of DNA Banks Worldwide -- An Empirical Survey on Biobanking of Human Genetic Material and Data in Six EU Countries -- Mutation Databases and Ethical Considerations. | |
| 505 | 8 | |a Section 2 -- Of Populations and Communities -- Community Engagement in Genetic Research: The "Slow Code" of Research Ethics? -- Competing Perspectives on Reasons for Participation and Non-Participation in the North Cumbria Community Genetics Project -- The Engagement of Consumers in Genetics Education: Lessons Learned -- Racial Profiling of DNA Samples : Will it Affect Scientific Knowledge About Human Genetic Variation? -- Problematizing the Notion of "Community" in Research Ethics -- On the Intersection of Privacy, Consent, Commerce and Genetics Research. | |
| 505 | 8 | |a A Presumed-Consent Model for Regulating Informed Consent of Genetic Research Involving DNA Banking -- Ethical and Legal Issues in Genetic Biobanking -- Do the Ethical Duties of Donor, and Administrators, Depend on Whether the Database is Public or Private? -- Public Attitudes to Participating in UK Biobank : A DNA Bank, Lifestyle and Morbidity Database on 500,000 Members of the UK Public Aged 45-69 -- Section 3 -- Of Commerce, Patents and Benefit-Sharing -- Commercial Biobanks and Genetic Research: Banking Without Checks? | |
| 505 | 8 | |a PXE International : Harnessing Intellectual Property Law for Benefit-Sharing -- Advances in Science and Progress of Humanity: A Global Perspective on DNA Sampling -- Benefit-Sharing in the New Genomic Marketplace: Expanding the Ethical Frame of Reference -- Harmonizing Commercialisation and Gene Patent Policy with Other Social Goals -- Preliminary Data on U.S. DNA Based Patents and Plans for a Survey of Licensing Practices -- Towards a Universal Definition of "Benefit-Sharing" -- Do Patents Encourage or Inhibit Genomics as a Global Public Good? | |
| 505 | 8 | |a Patents and Benefit-Sharing as a Challenge for Corporate Ethics -- Pharmaceutical Patents and Benefit-Sharing: Evolution of Drug Accessibility in Brazil since the 1980's -- Reconciling Social Justice and Economic Opportunism: Regulating the Newfoundland Genome -- Section 4 -- Of Information and Discrimination -- Attitudes to Genetic Research and Uses of Genetic Information: Support, Concerns and Genetic Discrimination -- Genetic Information and Insurance: Some Issues -- Discrimination -- "Genetic Discrimination" in an International Context. | |
| 520 | |a Thirty-five papers from the third International DNA Sampling Conference, held in Montreal in September 2002, provide a critical discussion of the socio-ethical and legal issues surrounding DNA sampling in communities and populations around the globe. Contributors address topics related to biobanks and databases; community engagement; confidentialit. | ||
| 504 | |a Includes bibliographical references and index. | ||
| 546 | |a English. | ||
| 590 | |a ProQuest Ebook Central |b Ebook Central Academic Complete | ||
| 650 | 0 | |a Medical genetics |x Law and legislation |v Congresses. | |
| 650 | 0 | |a DNA fingerprinting |x Law and legislation |v Congresses. | |
| 650 | 0 | |a Human population genetics |x Moral and ethical aspects |v Congresses. | |
| 650 | 6 | |a Génétique des populations humaines |x Aspect moral |v Congrès. | |
| 650 | 7 | |a DNA fingerprinting |x Law and legislation |2 fast | |
| 650 | 7 | |a Medical genetics |x Law and legislation |2 fast | |
| 655 | 7 | |a Conference papers and proceedings |2 fast | |
| 700 | 1 | |a Knoppers, Bartha Maria. |4 edt | |
| 776 | |z 90-04-13678-9 | ||
| 856 | 4 | 0 | |u https://ebookcentral.uam.elogim.com/lib/uam-ebooks/detail.action?docID=253657 |z Texto completo |
| 938 | |a EBL - Ebook Library |b EBLB |n EBL253657 | ||
| 938 | |a ProQuest MyiLibrary Digital eBook Collection |b IDEB |n 46532 | ||
| 994 | |a 92 |b IZTAP | ||