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Testing baby : the transformation of newborn screening, parenting, and policy making /
Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to...
| Clasificación: | Libro Electrónico |
|---|---|
| Autor principal: | |
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
New Brunswick, NJ :
Rutgers University Press,
[2011]
|
| Colección: | Critical issues in health and medicine.
|
| Temas: | |
| Acceso en línea: | Texto completo |
MARC
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| 100 | 1 | |a Grob, Rachel, |d 1966- | |
| 245 | 1 | 0 | |a Testing baby : |b the transformation of newborn screening, parenting, and policy making / |c Rachel Grob. |
| 264 | 1 | |a New Brunswick, NJ : |b Rutgers University Press, |c [2011] | |
| 264 | 4 | |c ©2011 | |
| 300 | |a 1 online resource (xi, 272 pages) | ||
| 336 | |a text |b txt |2 rdacontent | ||
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| 338 | |a online resource |b cr |2 rdacarrier | ||
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| 490 | 1 | |a Critical issues in health and medicine | |
| 504 | |a Includes bibliographical references and index. | ||
| 505 | 0 | |a Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood? | |
| 520 | |a Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. Rachel Grob's cautionary tale explores the powerful ways that parents' narratives. | ||
| 506 | |3 Use copy |f Restrictions unspecified |2 star |5 MiAaHDL | ||
| 533 | |a Electronic reproduction. |b [Place of publication not identified] : |c HathiTrust Digital Library, |d 2011. |5 MiAaHDL | ||
| 538 | |a Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002. |u http://purl.oclc.org/DLF/benchrepro0212 |5 MiAaHDL | ||
| 583 | 1 | |a digitized |c 2011 |h HathiTrust Digital Library |l committed to preserve |2 pda |5 MiAaHDL | |
| 546 | |a English. | ||
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| 650 | 0 | |a Newborn infants |x Diseases |x Diagnosis. | |
| 650 | 0 | |a Medical screening. | |
| 650 | 0 | |a Newborn screening. | |
| 650 | 0 | |a Newborn infants. | |
| 650 | 0 | |a Parents. | |
| 650 | 0 | |a Medical policy. | |
| 650 | 1 | 2 | |a Neonatal Screening |
| 650 | 1 | 2 | |a Infant, Newborn |
| 650 | 2 | 2 | |a Parents |
| 650 | 2 | 2 | |a Health Policy |
| 650 | 6 | |a Nouveau-nés |x Maladies |x Diagnostic. | |
| 650 | 6 | |a Dépistage (Médecine) | |
| 650 | 6 | |a Dépistage néonatal. | |
| 650 | 6 | |a Nouveau-nés. | |
| 650 | 6 | |a Parents. | |
| 650 | 6 | |a Politique sanitaire. | |
| 650 | 7 | |a broader terms. |2 aat | |
| 650 | 7 | |a parents. |2 aat | |
| 650 | 7 | |a MEDICAL |x Public Health. |2 bisacsh | |
| 650 | 7 | |a Parents |2 fast | |
| 650 | 7 | |a Newborn screening |2 fast | |
| 650 | 7 | |a Newborn infants |2 fast | |
| 650 | 7 | |a Medical policy |2 fast | |
| 650 | 7 | |a Medical screening |2 fast | |
| 650 | 7 | |a Newborn infants |x Diseases |x Diagnosis |2 fast | |
| 650 | 7 | |a Neugeborenenkrankheit |2 gnd | |
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| 758 | |i has work: |a Testing baby (Text) |1 https://id.oclc.org/worldcat/entity/E39PCGHBj399G9vkMMxCt7kHcq |4 https://id.oclc.org/worldcat/ontology/hasWork | ||
| 776 | 0 | 8 | |i Print version: |a Grob, Rachel, 1966- |t Testing baby. |d New Brunswick, NJ : Rutgers University Press, ©2011 |w (DLC) 2010049959 |
| 830 | 0 | |a Critical issues in health and medicine. | |
| 856 | 4 | 0 | |u https://ebookcentral.uam.elogim.com/lib/uam-ebooks/detail.action?docID=858961 |z Texto completo |
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