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090817s2008 xx ob 001 0 eng d |
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|a 174.2
|a 174.2'8
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|a UAMI
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100 |
1 |
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|a Elger, Bernice S.,
|d 1964-
|1 https://id.oclc.org/worldcat/entity/E39PBJfrGkYqwfqMfJmbKDckjC
|
245 |
1 |
0 |
|a Ethical Issues in Governing Biobanks :
|b Global Perspectives.
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260 |
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|a Farnham :
|b Ashgate Pub.,
|c 2008.
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300 |
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|a 1 online resource (268 pages)
|
336 |
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|a text
|b txt
|2 rdacontent
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|a computer
|b c
|2 rdamedia
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|a online resource
|b cr
|2 rdacarrier
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0 |
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|a Cover; Contents; Notes on the Contributors; Acknowledgements; 1 Introduction: Biobanks, Genomics, and Research--A Nightmare for Public Policy Makers?; PART I: RESEARCH BIOBANKS: CURRENT STATUS AND DEBATES; PART II: CONSENSUS AND CONTROVERSIES AMONG INTERNATIONAL EXPERTS CONCERNING ISSUES RAISED BY GENETIC DATABASES; PART III: SHAPING THE FUTURE LEGAL AND ETHICAL DEVELOPMENT OF GENETIC DATABASES; Index.
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|a Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks.
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0 |
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|a Print version record.
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504 |
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|a Includes bibliographical references and index.
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590 |
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|a ProQuest Ebook Central
|b Ebook Central Academic Complete
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590 |
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|a eBooks on EBSCOhost
|b EBSCO eBook Subscription Academic Collection - Worldwide
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650 |
|
0 |
|a Human genetics
|x Databases
|x Law and legislation.
|
650 |
|
0 |
|a Human genetics
|x Databases
|x Moral and ethical aspects.
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650 |
|
0 |
|a Human genome.
|
650 |
|
0 |
|a Confidential communications.
|
650 |
1 |
2 |
|a Genome, Human
|
650 |
2 |
2 |
|a Confidentiality
|
650 |
2 |
2 |
|a Databases, Genetic
|x ethics
|
650 |
2 |
2 |
|a Databases, Genetic
|x legislation & jurisprudence
|
650 |
2 |
2 |
|a Genetic Research
|x ethics
|
650 |
2 |
2 |
|a Genetics, Population
|x ethics
|
650 |
|
6 |
|a Génétique humaine
|x Bases de données
|x Aspect moral.
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650 |
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6 |
|a Génome humain.
|
650 |
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6 |
|a Secret professionnel.
|
650 |
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7 |
|a BUSINESS & ECONOMICS
|x Business Ethics.
|2 bisacsh
|
650 |
|
7 |
|a Confidential communications
|2 fast
|
650 |
|
7 |
|a Human genome
|2 fast
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700 |
1 |
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|a Biller-Andorno, Nikola.
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700 |
1 |
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|a Capron, Alexander M.
|
758 |
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|i has work:
|a Ethical issues in governing biobanks (Text)
|1 https://id.oclc.org/worldcat/entity/E39PCFRxgCHMymy9g7MmrVMRjy
|4 https://id.oclc.org/worldcat/ontology/hasWork
|
776 |
1 |
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|z 9780754672555
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856 |
4 |
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|u https://ebookcentral.uam.elogim.com/lib/uam-ebooks/detail.action?docID=438280
|z Texto completo
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