Surgically shaping children : technology, ethics, and the pursuit of normality /

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"At a time when medical technologies make it ever easier to enhance our minds and bodies, a debate has arisen about whether such efforts promote a process of 'normalization,' which makes it ever harder to tolerate the natural anatomical differences among us. The debate becomes especia...

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Detalles Bibliográficos
Clasificación:Libro Electrónico
Otros Autores: Parens, Erik, 1957-
Formato: Electrónico eBook
Idioma:Inglés
Publicado: Baltimore, Md. : Johns Hopkins University Press, [2006]
Colección:UPCC book collections on Project MUSE.
Temas:
Children > Surgery > Moral and ethical aspects.
Abnormalities, Human > Moral and ethical aspects.
Surgery, Plastic > Moral and ethical aspects.
Children > Surgery > Decision making.
Decision making in children.
Children.
Social perception.
Plastic Surgery Procedures > ethics
Achondroplasia > surgery
Biomedical Technology > ethics
Child
Cleft Palate > surgery
Genitalia > abnormalities
Social Perception
Enfants > Chirurgie > Aspect moral.
Chirurgie plastique > Aspect moral.
Enfants > Chirurgie > Prise de décision.
Prise de décision chez l'enfant.
Enfants.
Perception sociale.
children (people by age group)
MEDICAL > Prosthesis.
MEDICAL > Surgery > General.
Social perception
Children
Children > Surgery > Moral and ethical aspects
Decision making in children
Surgery, Plastic > Moral and ethical aspects
Acceso en línea:Texto completo
Tabla de Contenidos:
  • Introduction. Thinking about Surgically Shaping Children / Erik Parens
  • Part I. Personal Narratives About Appearance-Normalizing Surgery
  • Twisted lies : my journey in an imperfect body / Sherri G. Morrris
  • Do I make you uncomfortable? Reflections on using surgery to reduce the distress of others / Cassandra Aspinall
  • My shoe size stayed the same : maintaining a positive sense of identity with achondroplasia and limb-lengthening surgeries / Emily Sullivan Sanford
  • The seduction of the surgical fix / Lisa Abelow Hedley
  • Part II. Technology and the Pursuit Of Normality
  • Concepts of technology and their role in moral reflection / James C. Edwards
  • Emily's scars : surgical shapings, technoluxe, and bioethics / Arthur W. Frank
  • Thoughts on the desire for normality / Eva Feder Kittay
  • Part III. The Surgical Context
  • To cut or not to cut? A surgeon's perspective on surgically shaping children / Jeffrey L. Marsh
  • What's special about the surgical context? / Wendy E. Mouradian
  • Are we helping children? Outcome assessments in craniofacial care / Wendy E. Mouradian [and others]
  • Part IV. Children and Parents Deciding About Appearance-Normalizing Surgery
  • Who should decide and how? / Priscilla Alderson
  • The power of parents and the agency of children / Hilde Lindemann
  • "In their best interests" : parents' experience of atypical genitalia / Ellen K. Feder
  • Toward truly informed decisions about appearance-normalizing surgeries / Paul Steven Miller
  • Appearance-altering surgery, children's sense of self, and parental love / Adrienne Asch
  • What to expect when you have the child you weren't expecting / Alice Domurat Dreger.

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