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When children die : improving palliative and end-of-life care for children and their families /
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and...
| Clasificación: | Libro Electrónico |
|---|---|
| Autor Corporativo: | |
| Otros Autores: | , |
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
Washington, D.C. :
National Academies Press,
©2003.
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| Temas: | |
| Acceso en línea: | Texto completo |
MARC
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| 020 | |a 9780309502153 |q (electronic bk.) | ||
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| 082 | 0 | 4 | |a 362.1/75/083 |2 22 |
| 049 | |a UAMI | ||
| 245 | 0 | 0 | |a When children die : |b improving palliative and end-of-life care for children and their families / |c Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors. |
| 260 | |a Washington, D.C. : |b National Academies Press, |c ©2003. | ||
| 300 | |a 1 online resource (xx, 690 pages) | ||
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a computer |b c |2 rdamedia | ||
| 338 | |a online resource |b cr |2 rdacarrier | ||
| 347 | |a data file | ||
| 504 | |a Includes bibliographical references and index. | ||
| 588 | 0 | |a Print version record. | |
| 520 | 8 | |a The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals exemplify "medicine with a heart." At worst, families' encounters with the health care system leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs are -- and are not -- being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do not -- and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury | |
| 505 | 0 | |a ""Front Matter""; ""Contents""; ""Preface""; ""Acknowledgments""; ""Reviewers""; ""Summary""; ""Introduction""; ""Patterns of Childhood Death in America""; ""Pathways to a Child�s Death""; ""Communication, Goal Setting, and Care Planning""; ""Care and Caring from Diagnosis Through Death and Bereavement""; ""Providing, Organizing, and Improving Care""; ""Financing of Palliative and End-of-Life Care for Children and Their Families""; ""Ethical and Legal Issues""; ""Educating Health Care Professionals""; ""Directions for Research""; ""References""; ""Appendix A Study Origins and Activities"" | |
| 505 | 8 | |a ""Appendix B Prognostication Scores""""Appendix C Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents""; ""Appendix D Cultural Dimensions of Care at Life�s End for Children and Their Families""; ""Appendix E Bereavement Experiences after the Death of a Child""; ""Appendix F End-of-Life Care in Emergency Medical Services for Children""; ""Appendix G Education in Pediatric Palliative Care""; ""Appendix H Progress in Pediatric Palliative Care in New York State�A Demonstration Project""; ""Appendix I Committee Biographical Statements""; ""Index"" | |
| 546 | |a English. | ||
| 590 | |a ProQuest Ebook Central |b Ebook Central Academic Complete | ||
| 650 | 0 | |a Terminally ill children |x Care. | |
| 650 | 0 | |a Terminally ill children |x Family relationships. | |
| 650 | 0 | |a Palliative treatment. | |
| 650 | 0 | |a Children. | |
| 650 | 0 | |a Medical policy. | |
| 650 | 0 | |a Patient participation. | |
| 650 | 1 | 2 | |a Terminal Care |
| 650 | 2 | |a Child | |
| 650 | 2 | |a Palliative Care | |
| 650 | 2 | 2 | |a Health Policy |
| 650 | 2 | 2 | |a Patient Participation |
| 650 | 2 | 2 | |a Professional-Family Relations |
| 650 | 2 | 2 | |a Terminal Care |x economics |
| 650 | 2 | 2 | |a Terminal Care |x legislation & jurisprudence |
| 651 | 2 | |a United States | |
| 650 | 6 | |a Enfants malades en phase terminale |x Soins. | |
| 650 | 6 | |a Enfants malades en phase terminale |x Relations familiales. | |
| 650 | 6 | |a Soins palliatifs. | |
| 650 | 6 | |a Soins en phase terminale. | |
| 650 | 6 | |a Enfants. | |
| 650 | 6 | |a Politique sanitaire. | |
| 650 | 6 | |a Participation des patients. | |
| 650 | 6 | |a Relations soignant-famille. | |
| 650 | 7 | |a children (people by age group) |2 aat | |
| 650 | 7 | |a MEDICAL |x Terminal Care. |2 bisacsh | |
| 650 | 7 | |a Patient participation |2 fast | |
| 650 | 7 | |a Medical policy |2 fast | |
| 650 | 7 | |a Children |2 fast | |
| 650 | 7 | |a Palliative treatment |2 fast | |
| 650 | 7 | |a Terminally ill children |x Care |2 fast | |
| 650 | 7 | |a Terminally ill children |x Family relationships |2 fast | |
| 700 | 1 | |a Field, Marilyn J. |q (Marilyn Jane) |1 https://id.oclc.org/worldcat/entity/E39PCjxm3pQ6GBFrkx6rkvwP73 | |
| 700 | 1 | |a Behrman, Richard E., |d 1931- |1 https://id.oclc.org/worldcat/entity/E39PBJjmXb9k3BfTwdPYmKd4v3 | |
| 710 | 2 | |a Institute of Medicine (U.S.). |b Committee on Palliative and End-of-Life Care for Children and Their Families. | |
| 758 | |i has work: |a When children die (Text) |1 https://id.oclc.org/worldcat/entity/E39PCGcRPV37DwgVvvFK6jfcyd |4 https://id.oclc.org/worldcat/ontology/hasWork | ||
| 776 | 0 | 8 | |i Print version: |t When children die. |d Washington, D.C. : National Academy Press, ©2003 |z 0309084377 |w (DLC) 2002014542 |w (OCoLC)50598446 |
| 856 | 4 | 0 | |u https://ebookcentral.uam.elogim.com/lib/uam-ebooks/detail.action?docID=3375163 |z Texto completo |
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