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Personalized Medicine : Empowered Patients in the 21st Century? /
Inside today's data-driven personalized medicine, and the time, effort, and information required from patients to make it a realityMedicine has been personal long before the concept of "personalized medicine" became popular. Health professionals have always taken into consideration th...
| Clasificación: | Libro Electrónico |
|---|---|
| Autor principal: | |
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
New York, NY :
New York University Press,
[2017]
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| Colección: | Biopolitics ;
7 |
| Temas: | |
| Acceso en línea: | Texto completo Texto completo |
MARC
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| 100 | 1 | |a Prainsack, Barbara, |e author. |4 aut |4 http://id.loc.gov/vocabulary/relators/aut | |
| 245 | 1 | 0 | |a Personalized Medicine : |b Empowered Patients in the 21st Century? / |c Barbara Prainsack. |
| 264 | 1 | |a New York, NY : |b New York University Press, |c [2017] | |
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| 505 | 0 | 0 | |t Frontmatter -- |t Contents -- |t Preface and Acknowledgments -- |t List of Figures, Boxes, and Tables -- |t Technical Terms and Acronyms -- |t 1. Setting the Stage for Personalized Medicine -- |t 2. The Patient Researcher -- |t 3. Always On -- |t 4. Beyond Empowerment -- |t 5. Just Profit? -- |t 6. Beyond Individualism -- |t 7. The Social Life of Evidence in Personalized Medicine -- |t 8. Conclusion -- |t Notes -- |t References -- |t Index -- |t About the Author |
| 506 | 0 | |a restricted access |u http://purl.org/coar/access_right/c_16ec |f online access with authorization |2 star | |
| 520 | |a Inside today's data-driven personalized medicine, and the time, effort, and information required from patients to make it a realityMedicine has been personal long before the concept of "personalized medicine" became popular. Health professionals have always taken into consideration the individual characteristics of their patients when diagnosing, and treating them. Patients have cared for themselves and for each other, contributed to medical research, and advocated for new treatments. Given this history, why has the notion of personalized medicine gained so much traction at the beginning of the new millennium? Personalized Medicine investigates the recent movement for patients' involvement in how they are treated, diagnosed, and medicated; a movement that accompanies the increasingly popular idea that people should be proactive, well-informed participants in their own healthcare.While it is often the case that participatory practices in medicine are celebrated as instances of patient empowerment or, alternatively, are dismissed as cases of patient exploitation, Barbara Prainsack challenges these views to illustrate how personalized medicine can give rise to a technology-focused individualism, yet also present new opportunities to strengthen solidarity. Facing the future, this book reveals how medicine informed by digital, quantified, and computable information is already changing the personalization movement, providing a contemporary twist on how medical symptoms or ailments are shared and discussed in society. Bringing together empirical work and critical scholarship from medicine, public health, data governance, bioethics, and digital sociology, Personalized Medicine analyzes the challenges of personalization driven by patient work and data. This compelling volume proposes an understanding that uses novel technological practices to foreground the needs and interests of patients, instead of being ruled by them. | ||
| 538 | |a Mode of access: Internet via World Wide Web. | ||
| 546 | |a In English. | ||
| 588 | 0 | |a Description based on online resource; title from PDF title page (publisher's Web site, viewed 29. Jun 2022) | |
| 650 | 0 | |a Personalized medicine |y 21st century. | |
| 650 | 0 | |a Personalized medicine. | |
| 650 | 0 | |a Pharmacogenetics. | |
| 650 | 7 | |a MEDICAL / Health Care Delivery. |2 bisacsh | |
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