"Save My Kid" : How Families of Critically Ill Children Cope, Hope, and Negotiate an Unequal Healthcare System /

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A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart o...

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Detalles Bibliográficos
Clasificación:Libro Electrónico
Autor principal: Gengler, Amanda M. (Autor)
Formato: Electrónico eBook
Idioma:Inglés
Publicado: New York, NY : New York University Press, [2020]
Temas:
Catastrophic illness > Social aspects > United States.
Child health services > United States.
Children.
Critically ill children > Family relationships.
Critically ill children > Medical care > United States.
Health services accessibility > United States.
Health services accessibility.
Parents of terminally ill children > Psychology.
SOCIAL SCIENCE / Children's Studies.
Ronald Mcdonald House.
care-captaining in medicine.
care-entrusting in medicine.
children with critical illness.
critical illness management.
critical illness treatment.
cultural health capital.
emotional costs of critical illness.
emotional management for critical illness.
emotional management of critical illness.
ethnographic research in medicine.
families of critically ill children.
healthcare inequalities for critical illness.
healthcare inequality for critical illness.
research methodology in sociology.
Acceso en línea:Texto completo
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Tabla de Contenidos:
  • Frontmatter
  • Contents
  • Preface
  • Part I: Families in Crisis
  • 1. Hope Is a Thing with Feathers
  • 2. Studying Families of Critically Ill Children
  • Part II: Unequal Illnesses
  • 3. Care- Captaining: Climbing the Rungs of the US Healthcare System
  • 4. Care- Entrusting: Staying on the Medical Sidelines
  • 5. Blending and Switching Care Strategies: Finding Emotional Equilibrium
  • Part III: Tangled Up in Hope
  • 6. When Everything Is Not Enough
  • 7. The Fragility and Tenacity of Hope
  • 8. Emotionally Perilous Paths: Illness Management, Emotion Management, and the Production of Healthcare Inequalities
  • Acknowledgments
  • Appendix A: Doing Fieldwork in Emotionally Fraught Settings: A Brief Reflection
  • Appendix B: Family and Physician Demographics
  • Notes
  • References
  • Index
  • About the Author

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