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Privacy and the Past : Research, Law, Archives, Ethics /
When the new HIPAA privacy rules regarding the release of health information took effect, medical historians suddenly faced a raft of new ethical and legal challenges-even in cases where their subjects had died years, or even a century, earlier. In Privacy and the Past, medical historian Susan C. La...
| Autor principal: | |
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| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
New Brunswick, NJ :
Rutgers University Press,
[2016]
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| Colección: | Critical Issues in Health and Medicine
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| Temas: | |
| Acceso en línea: | Texto completo Texto completo |
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| 245 | 1 | 0 | |a Privacy and the Past : |b Research, Law, Archives, Ethics / |c Susan C. Lawrence. |
| 264 | 1 | |a New Brunswick, NJ : |b Rutgers University Press, |c [2016] | |
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| 505 | 0 | 0 | |t Frontmatter -- |t Contents -- |t Acknowledgments -- |t Chapter 1. Introduction: The Historians, the County, and the Dead -- |t Chapter 2. Research, Privacy, and Federal Regulations -- |t Chapter 3. Historians, the First Amendment, and Invasion of Privacy -- |t Chapter 4. Archivists at the Gates -- |t Chapter 5. Managing Privacy: Historians at Work -- |t Chapter 6. Conclusion: Resistance -- |t Notes -- |t Bibliography -- |t Index |
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| 520 | |a When the new HIPAA privacy rules regarding the release of health information took effect, medical historians suddenly faced a raft of new ethical and legal challenges-even in cases where their subjects had died years, or even a century, earlier. In Privacy and the Past, medical historian Susan C. Lawrence explores the impact of these new privacy rules, offering insight into what historians should do when they research, write about, and name real people in their work. Lawrence offers a wide-ranging and informative discussion of the many issues involved. She highlights the key points in research ethics that can affect historians, including their ethical obligations to their research subjects, both living and dead, and she reviews the range of federal laws that protect various kinds of information. The book discusses how the courts have dealt with privacy in contexts relevant to historians, including a case in which a historian was actually sued for a privacy violation. Lawrence also questions who gets to decide what is revealed and what is kept hidden in decades-old records, and she examines the privacy issues that archivists consider when acquiring records and allowing researchers to use them. She looks at how demands to maintain individual privacy both protect and erase the identities of people whose stories make up the historical record, discussing decisions that historians have made to conceal identities that they believed needed to be protected. Finally, she encourages historians to vigorously resist any expansion of regulatory language that extends privacy protections to the dead. Engagingly written and powerfully argued, Privacy and the Past is an important first step in preventing privacy regulations from affecting the historical record and the ways that historians write history. | ||
| 538 | |a Mode of access: Internet via World Wide Web. | ||
| 546 | |a In English. | ||
| 588 | 0 | |a Description based on online resource; title from PDF title page (publisher's Web site, viewed 01. Dez 2022) | |
| 650 | 0 | |a Historians |x Legal status, laws, etc |z United States. | |
| 650 | 0 | |a History |x Research |x Law and legislation |z United States. | |
| 650 | 0 | |a Privacy, Right of |z United States. | |
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