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Testing Baby : The Transformation of Newborn Screening, Parenting, and Policymaking /

Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also ch...

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Detalles Bibliográficos
Clasificación:Libro Electrónico
Autor principal: Grob, Rachel (Autor)
Formato: Electrónico eBook
Idioma:Inglés
Publicado: New Brunswick, NJ : Rutgers University Press, [2011]
Colección:Critical Issues in Health and Medicine
Temas:
Acceso en línea:Texto completo
Texto completo
Tabla de Contenidos:
  • Frontmatter
  • Contents
  • Acknowledgments
  • Chapter 1. Saving Babies, Changing Lives
  • Chapter 2. Diagnostic Odysseys, Old and New: How Newborn Screening Transforms Parents' Encounters with Disease
  • Chapter 3. Specters in the Room: Parenting in the Shadow of Cystic Fibrosis
  • Chapter 4. Encounters with Expertise: Parents and Health Care Professionals
  • Chapter 5. A House on Fire: How Private Experiences Ignite Public Voices
  • Chapter 6. Brave New Worlds: Visible in a Single Drop of Blood?
  • Notes
  • References
  • Index