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The Ethics of Research Biobanking
The Ethics of Research Biobanking investigates some of the ethical, legal and social challenges raised by research biobanking. In the first part of the book the authors pursue the different regulatory options envisaged within a normative terrain dictated by different conceptions and interpretations...
| Clasificación: | Libro Electrónico |
|---|---|
| Autor Corporativo: | |
| Otros Autores: | , , |
| Formato: | Electrónico eBook |
| Idioma: | Inglés |
| Publicado: |
New York, NY :
Springer US : Imprint: Springer,
2009.
|
| Edición: | 1st ed. 2009. |
| Temas: | |
| Acceso en línea: | Texto Completo |
MARC
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| 001 | 978-0-387-93872-1 | ||
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| 020 | |a 9780387938721 |9 978-0-387-93872-1 | ||
| 024 | 7 | |a 10.1007/978-0-387-93872-1 |2 doi | |
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| 072 | 7 | |a MED050000 |2 bisacsh | |
| 072 | 7 | |a PSAD |2 thema | |
| 082 | 0 | 4 | |a 174.2 |2 23 |
| 245 | 1 | 4 | |a The Ethics of Research Biobanking |h [electronic resource] / |c edited by Jan Helge Solbakk, Soren Holm, B. Hofmann. |
| 250 | |a 1st ed. 2009. | ||
| 264 | 1 | |a New York, NY : |b Springer US : |b Imprint: Springer, |c 2009. | |
| 300 | |a XVIII, 357 p. |b online resource. | ||
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a computer |b c |2 rdamedia | ||
| 338 | |a online resource |b cr |2 rdacarrier | ||
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| 505 | 0 | |a Research Biobanking: The Traditional Approach -- Consent to Biobank Research: One Size Fits All? -- What No One Knows Cannot Hurt You: The Limits of Informed Consent in the Emerging World of Biobanking -- Users and Uses of the Biopolitics of Consent: A Study of DNA Banks -- Information Rights on the Edge of Ignorance -- The Dubious Uniqueness of Genetic Information -- Duties and Rights of Biobank Participants: Principled Autonomy, Consent, Voluntariness and Privacy -- Biobanking and Disclosure of Research Results: Addressing the Tension Between Professional Boundaries and Moral Intuition -- Biobanks and Our Common Good -- Trust, Distrust and Co-production: The Relationship Between Research Biobanks and Donors -- Scientific Citizenship, Benefit, and Protection in Population-Based Research -- Research Biobanking: Towards a New Conceptual Approach -- Mapping the Language of Research Biobanking: An Analogical Approach -- The Use of Analogical Reasoning in Umbilical Cord Blood Biobanking -- The Alexandria Plan: Creating Libraries for Human Tissue Research and Therapeutic Use -- The Art of Biocollections -- The Health Dugnad: Biobank Participation as the Solidary Pursuit of the Common Good -- Embodied Gifting: Reflections on the Role of Information in Biobank Recruitment -- Conscription to Biobank Research? -- Ownership Rights in Research Biobanks: Do We Need a New Kind of 'Biological Property'? -- Legal Challenges and Strategies in the Regulation of Research Biobanking -- Annexation of Life: The Biopolitics of Industrial Biology -- In the Ruins of Babel: Should Biobank Regulations be Harmonized?. | |
| 520 | |a The Ethics of Research Biobanking investigates some of the ethical, legal and social challenges raised by research biobanking. In the first part of the book the authors pursue the different regulatory options envisaged within a normative terrain dictated by different conceptions and interpretations of the informed consent doctrine. In the second part a completely new approach is explored. The authors investigate the conceptual potential of different analogies outside medical research used to depict people's change and exchange of valuables between themselves and a common institution. The book is aimed at both academic and professional audiences (biobank curators, biobank researchers, ethicists, gene-epidemiologists, health law experts, philosophers, social scientists and advanced and graduate students in the relevant disciplines) as well as health and research regulators, ministries, politicians and the general public. | ||
| 650 | 0 | |a Bioethics. | |
| 650 | 0 | |a Medical sciences. | |
| 650 | 0 | |a Medical genetics. | |
| 650 | 0 | |a Cytology. | |
| 650 | 0 | |a Epidemiology. | |
| 650 | 1 | 4 | |a Bioethics. |
| 650 | 2 | 4 | |a Health Sciences. |
| 650 | 2 | 4 | |a Medical Genetics. |
| 650 | 2 | 4 | |a Cell Biology. |
| 650 | 2 | 4 | |a Epidemiology. |
| 700 | 1 | |a Solbakk, Jan Helge. |e editor. |4 edt |4 http://id.loc.gov/vocabulary/relators/edt | |
| 700 | 1 | |a Holm, Soren. |e editor. |4 edt |4 http://id.loc.gov/vocabulary/relators/edt | |
| 700 | 1 | |a Hofmann, B. |e editor. |4 edt |4 http://id.loc.gov/vocabulary/relators/edt | |
| 710 | 2 | |a SpringerLink (Online service) | |
| 773 | 0 | |t Springer Nature eBook | |
| 776 | 0 | 8 | |i Printed edition: |z 9780387939889 |
| 776 | 0 | 8 | |i Printed edition: |z 9780387938714 |
| 776 | 0 | 8 | |i Printed edition: |z 9781489982742 |
| 856 | 4 | 0 | |u https://doi.uam.elogim.com/10.1007/978-0-387-93872-1 |z Texto Completo |
| 912 | |a ZDB-2-SME | ||
| 912 | |a ZDB-2-SXM | ||
| 950 | |a Medicine (SpringerNature-11650) | ||
| 950 | |a Medicine (R0) (SpringerNature-43714) | ||